I have a twenty one year old daughter with EDS type 3 who has had 5 left shoulder stabilization's consisting of 4 procedures to tighten the shoulder and one they called a basket wrap procedure and 1 on the right. The left shoulder is now continually dislocating and sits in a subluxed position. The orthopaedic team are now saying there is nothing more they can do for the R shoulder and want to fuse it to prevent it from coming out again and they are basically bulling my Daughter to do this procedure. The problem is that if she does not have the fusion operation they will not treat her dislocations and put the shoulder back in. She is not able to re-locate her shoulder herself due to one of the Surgeons creating a lip to try to keep the shoulder in. Does anyone know of a procedure or anything new that we could suggest to the Orthopaedic team.
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