
Ehlers-Danlos Syndrome Support Group
Ehlers-Danlos syndrome is a group of rare genetic disorders caused by a defect in collagen synthesis. Depending on the individual mutation, the severity of the disease can vary from mild to life-threatening. Common symptoms are unstable, flexible joints with a tendency to dislocate and subluxate, and elastic, fragile, soft skin that easily forms welts and scars.
Hypermobility Clinic
UCL Hospitals
40-50 Tottenham Street
London
W1T 4WT
UCLH
Secretary Leah
Leah.antunovic@uclh.nhs.uk
0207 380 9281
In regard her airway, ask them NOT to hyperextend her neck and use flexible intubabation if tube is necessary.
Few minutes anesthesia and they slip into canal, no big deal but big benefits.