In the morning and evening, in particular, my shoulders, elbow, hips, knees, ankles and feet kill me. I can only go down the steps one at a time like a baby. I cannot run with my 5 year old daughter anymore. I feel like an ond 85 year old. I am on oxycontin 80 mg twice a day and a fentanyl patch 100 mcg every 3 days. That is prescribed for coccydynia pain and is not helping any of the pain. Do other people with EDS feel the way I do? What do you do for pain? I have also tried the Tylenol, Advil, and Aleve products with no help.
Posts You May Be Interested In
Hi all! This is for those of you that have or have had the same neurologist for 4 years or more. I have been with mine now since 2009. He is one of the best movement disorder secialists in the midwest. I know he is extremely busy on the lecture circuit now and in fact not taking new patients there is a huge waiting list for him. BUT.... I feel like my visits are not what they use to be. He...
I gave my 2 week notice last Friday 13th. Now to join you fine people in a life of leisure and nothing else to do but to look out for myself....is it just me or does that sound pretty boring? My goal was to live to retire and I guess having to take early retirement because of health reasons wasn't exactly the way I had planned things. I just can't stay in that building that is reeking mildew...