In the morning and evening, in particular, my shoulders, elbow, hips, knees, ankles and feet kill me. I can only go down the steps one at a time like a baby. I cannot run with my 5 year old daughter anymore. I feel like an ond 85 year old. I am on oxycontin 80 mg twice a day and a fentanyl patch 100 mcg every 3 days. That is prescribed for coccydynia pain and is not helping any of the pain. Do other people with EDS feel the way I do? What do you do for pain? I have also tried the Tylenol, Advil, and Aleve products with no help.
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