Girl, as you know I just got one. I like to think that it is still me who is fighting. It is me who is doing it. It is me who chooses to do it on my own. Like I said, it hurt when i first had it put in, but its better now. And also something that I wont have forever. Only untill I stabilize my weight and food intake. Again, any further questions I would be happy to answer! All my love! You are beautiful my sister!

I've never had one myself, but when I was in IP there was a girl who did and she had hers for about 1 1/2 weeks. That's all I know though, sorry =/

*hugs* You're in my prayers.

Hi, I am sad for you and sending a huge hug. In UK you get tube fed when your bmi drops below about 13 but sometimes not until 10, its my greatest fear for my daughter, I so hope you can turn it round before this happens xx

I can't help you in any other way than to say you are in my prayers. xoxo

I never had either so I can't really give you advice on that one. I left you a message on your journal.
Love you

Holy crap! And u thought I was in rough shape. Actually getting tubed isn't so bad. I had to have the full hyperalimentation thing where they surgically put a catheter into a vien through my chest and pumped in 2500 cals per day. Now that was no fun. Ur best to take the tube, get some wt. on you, then renew your battle on the outside. I know how hard it's going 2 b hun. Just do a little so ur not in danger ok?

Karissa, I've had the TPN (just the IV- ew, ow, seven ports) for 1400 calories, and that was bearable. But NG? Oh god. I'm not under BMI of 13, and in fact, I have a higher weight than you Karissa. :\ So that's why I'm so adamant on staying out of the hospital. I just have to gain a little weight. ARGH.

When I got my NG tube I was at 74 lbs 5' 7" and had it in for 3 weeks. They would have done it at 86 lbs but I tried to do it on my own first and well it didn't work. I just couldn't eat that much. I started out on tube only and then moved to tube feeding and eating. I found it easier then when I just had to eat to gain. But everyone is different. Oh yeah I was also on the IV thing the whole time too.

if i remember correctly i got down to about 65 pounds but im a lot shorter only 4 foot 11

I had one as a teenager, and I remember being very resistant, but otherwise it really was not bad at all. It didn't hurt or anything...especially considering the number of times I pulled it out!

i had the NG tube for about a week while i was in the hospital...and i survived it

Okay, I appreciate all your responses. I think I've got more of an understanding of when they use the tube. I don't think I'm to that point, honestly. Thanks guys.

I have not had one but I put them in all the time, for my job. It is not fun doing it or for the patient receiving it. I have done feedings many many many times. Anything regarding the semantics of the feeding itself I can help you with. I would not want one, but after it is put in it's pretty much smooth sailing, but not fun.....i hope you don't have to have one though lily, but you might need it.

i haven't had personal experience with tube feedings... but have work experience with them.

doc's usually like to save tpn for last resort... because when nutrition goes thru a central line, it by passes the gut. i know many of us with ed's already have a slow digestion system to begin with.

as far as tube feeding.. ng is is temporary. peg is more permanent (requires surgical placement). nug tubes you can start using after xray confirming placement... peg's you need to wait a while before you can start using it, because your body needs to heal a bit. but both ng and peg will allow your body to continue using your gut, ie digestive system.

most people i know with peg tubes obviously have pain after placement. they require daily dressing changes, etc. ng tubes, obviously are uncomfortable because they pass thru your nose. many people find them annoying and may have a sore throat. dopoff's, very similar to ng tubes.. are slightly more long-term than the ng.. they have a smaller lumen so they are more comfortable and flexible.. but still pass from your nose to belly.

your husband must care all i can say
i no you may be scared but will help in long run i had tun when i wast 4 stone for 8 weeks i ate little to at the end of 8 weeks can you try suopport drinks instead of tub feeding and bulid up soups