Dystonia Support Group

Dystonia (literally, "abnormal muscle tone") is a generic term used to describe a neurological movement disorder involving involuntary, sustained muscle contractions. Dystonia may affect muscles throughout the body, in certain parts of the body, or may be confined to particular muscles or muscle groups.

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Disablity??

Is with Dystonia recieving disability and if so would you have any advice or help on how to go about getting it? I have been battling Cervical Dystonia for almost 3 years and can no longer work. I have been getting Botox treatments but they give me little or no relief. I have applied for SSI 3 times and have been denied all 3 times. I have a 4 year old son and I have no income. If anyone has any infromation on what I could do to help I would greatly appreciate it! God Bless...

Replies

deleted_user
deleted_user

You have to get a lawyer. There are lawyer's that specialise in ssi, and social security benefits. They will not charge you until you get the money. It should go back to when your illness began. I don't qualify for ssi, or social security benefits, because my husband works, and we have no children at home. I did get ssi briefly when my son was in high school, and my daughter was in college. My lawyer was great I didn't even have to go to court he took care of it.
Love Angela
bgoodwin44
bgoodwin44

Hi There,

I Was Also Turned Down 4 Times !

You Must Get A Lawyer...

I Had To Go In Front Of An Administrative Law Judge...I Finally Got Disability !

You Will Get Back Pay From The Time You Applied !

GOOD LUCK !

Love Ya, Barbara
deleted_user
deleted_user

I was also denied 3 times. It took about 3 years for my Social Security to finally be approved. At the time my children were 3 and 8. It was a long road. See what your county offers. During the waiting period I was able to apply for W-2. It was $628 a month. I live in Wisconsin. The county helped me out a ton. Good Luck!
deleted_user
deleted_user

I'm currently fighting for Social Security. I was denied once and got an attorney immediately. It's been two years and I'm told to expect a hearing within a year. Thank God I receive long term disability through my previous employer, but I am required to apply for Social Security. Hang in there...it's a long road.
deleted_user
deleted_user

Hi! I live in Alberta Canada. I don't know where you live, but here we have something called AISH (assured income for the severely handicapped.) I also have fibromyalgia...but...it depends greatly on the doctor. They have to mark the "severe" box. I would also like to be friends if you friend me! I really need them..
deleted_user
deleted_user

I also have a 4 year old son and no income..I'm trying to get ssi but am not sure how to go about it
deleted_user
deleted_user

have you had any luck yet?