Dystonia Support Group

Dystonia (literally, "abnormal muscle tone") is a generic term used to describe a neurological movement disorder involving involuntary, sustained muscle contractions. Dystonia may affect muscles throughout the body, in certain parts of the body, or may be confined to particular muscles or muscle groups.

0 Online

Cant take it anymore

Sick of going through hell with eye lid spasms

Replies

AusSue
AusSue

Sorry you are going through this. I have not officially got dystonia but had the eyelid spasms & they gave me Botox for it & I have the injections every 4 months (approximately) & they help me a lot. See if you can find out if your opthomologist/eye Dr will refer you to some one who does this. I am fortunate that I dont get black eyes after wards, the eyes can hurt a bit but worth putting up with in my opinion.
Take care.
deleted_user
deleted_user

I see a neurologist for my Dystonia and get Botox injections in my neck. When I started having eye spasms, my Dr used Botox for that also. It worked great for me. Good luck!
Posts You May Be Interested In:
  • nana012

    I have cancer

    34
    I had to have a lung biopsy, and I have cancer. A very rare form that doesn't have any standard treatment. There just isn't a lot of case history for this. It is epithelioid hemangio endothelioma. The cancer support group doesn't talk every day. I can understand why. I'm waiting for the oncologist to call back for an appointment, and will hear in the next few days. Who knew. Ha!
  • ainteasybeineazy

    It's my Birthday and no one cares

    Today is my 25th birthday, to my somewhat lack of surprise I can see already no one really seems to care. I've always been the kinda person to make sure that everyone I Care about feels appreciated and knew somebody had their back. I can count 4 times this year when I Went out of my way to make sure a "friend" felt good on their birthday, especially if they got left hanging. Its early in the...