Hello I am new to this group also am part of ankylosing spondylitis group. My dystonia is very violent when it hits. Like today i was in the grocery store and had not taken my valium until eleven am and I started jerking and twisting and dancing in the middle of the store and could hardly walk but i just kept going and looked at people like take a good look, it is frustrating and i feel like screaming or crying man or not,but i just got home the best i could and rested, i also seem to be tremors more, i have to be careful already fused and if i jerk too much i can break my neck or spine,to me it is like a convulsion, because my neck is going to the right hard and fast and the rest of me jerking but i nevery lose consciousness, this is a terrible thing to go through but i am very thankful for the valium 5 mg. that helps i am allergic and have reacted to all the rest of the stuff i wish you all the best and you are in my thoughts, this to me is a very weird and strange illness to have and most people do have other things going on with it. peace and light and i hope you all can find relief and joy in each day even in the small things. Steve
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