Okay so Emma has hypotonia, but she is on the high end, and last week the PT mentioned the honeycomb shaped marks on her arms(looks like a rash in a honeycomb shape or like she has red arms with flesh colored octogons all over) her feet also turn blue if she sits for more than 3 or 4 minutes and they get sooooo cold. Her heart has been good-a few holes but there closing themselves as of her last Cardio apt (3 months ago) So my question is, is this normal for DS kids? Ive heard from some that it is and others like the PT that it should be delt with by the Cardio and that its a pretty bad cirulation problem? Any imput? We have an apt with the PED tomarrow to talk about it but just wondering if I am over reacting ( our PED thinks Im a Hypo :)
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