Dear Gardners ~ I'm taking a break for a bit. I keep getting more and more frustrated by not knowing how advanced my HCV is. Four months after a flawed bx, I still don't know, but I know it's not good. In preparation for yet another doctor appt., new doctor, whom I see I week from today, I dug out a fax that was sent to my ex gastro (he won't treat HCV) from the San Diego doctor's pathologists. The copy I was given by that gastro about 10 days ago is missing one page - I just noticed it. It's a critical page - in which the expert San Diego pathologists were speaking about an inadequate biopsy with fragmented tissue. The next page was their best guess of the stage of late fibrosis or early (or more) cirrhosis. And I don't have that page. I can't believe I just now noticed this. I have to have another bx, no telling when that will be because I'm going to insist that I go to Sunrise Hosp. in Vegas where they don't make mistakes, and I am losing my mind over all this. Not knowing where you stand is horrible.
Please understand how upset I am. I am consumed by all this and just not in the mood to write. I am in the garden but crying in the bamboo. And I'm going to stay there for now. I'll be back at some point. Right now, I am scared to death.
I would like to know this though ~ has anyone here had cirrhosis and what did you do? I think Joemz might be able to help, so I'll p/m him.
So I have to get that second page although the Vegas office is now shut down. I am hoping my ex-gastro has it in my files. I will call them tomorrow. I see my FIFTH doctor in this ongoing nightmare a week from today. I need another biopsy, done a certain way since I am advanced.