I am writing because my 3 year old daughter was diagnosed with BPV, Benign vertigo. She started getting episodes when she was 21 months old. Every 9 weeks like clock work she wakes up in the middle of the night, or first thing in the morning so dizzy that she can't walk and vomits. We have to go to the ER every time to get on IV so she doesn't get dehydrated. She says the room is spinning. Then she gets comatose. The whole episode lasts about 24 hours. We've seen every specialist in the book, neurologist, neuro ontologist, even an endochronlogist, genetists, and gastro. shes had eegs, mris, and catscans and even a rotary test and everything comes out fine. I feel like the drs. are missing something. why does she get comatose? why every 9 weeks? every dr. says they have never seen anything like it. can any one help us??? i am desperate and will travel anywhere. if anyone has any advice, you can email me at firstname.lastname@example.org . Thank you so much!
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