I am keen to speak to anyone suffering with similar symptoms to me as i am at a loose end with this illness and struggling to find answers!
Here is my story in brief...
I've been suffering with constant dizziness now for the past 9 months. It started with instances of severe dizziness where i would have sharp head and neck pains, a sudden drop in blood sugar and the feeling i was about to pass out. The room would spin like crazy and felt very life threatening. After a few hours i would feel fine again but eventually the spikes of dizzy "attacks" have faded out and for the past 6-7 months i feel dizzy constantly with little to no relief.
I was initially diagnosed with labrynthitis as the dizzy spells started after a viral infection but after 4 visits to the doctors and eventually an MRI scan, the results came back clear with no inflammation of the inner ear at all. Aswell as the feeling of heaviness in my head, i feel groggy, tired and with a "busy" feeling going on in my head all the time. On particularly bad days i get anxiety and feel panicky and on edge for no reason. I have got to a stable point where i can do everything i need to- go to work, go to the gym, walk the dogs, see friends and family etc but it is a constant struggle. Alcohol is a major trigger, i went on a hen weekend a few weeks back and it took me two weeks to get over the anxiety and intense dizziness and grogginess! I actually have no idea what is wrong with me or how i can ever see myself getting better. I am only 28 and have always led a fit and healthy life with no heath problems.
I am currently waiting to be accepted for a Vestibular Function Test so the doctors can see what activity is going on inside my brain to try to find the root of the cause but in the mean time i am struggling to cope with the headaches, floaty feeling while i'm walking and the inability to concentrate or see properly. A fairly new symptom is i sometimes feel like i'm looking through something hot, with the wavy vision and i get eye floaters in certain lights. Trying to keep active, going to the gym and keeping busy seem to help as well as being able to relax at home- but at work, i feel uncomfortable and unwell from the moment i arrive in work until the moment i leave. I work in an office and i don't know if the computers, concentration and lack of natural light are making the symptoms worse?
Trying to deal with such an isolating illness is a real challenge, especially because i "look" fine on the outside and am my normal chirpy, happy self around everybody. For anyone that knows me, they would tell you i was fine, but i couldn't be further from feeling fine!
I feel like speaking to people with similar issues may help me cope with this, even if only a little bit. No one understands the daily struggle people go through with these symotoms. My mum recently told me to "stop thinking about it" and it will go away- as if i have that option?!
Anyway, i completely sympathise with anyone out there suffering with this, i wouldn't wish this on my worst enemy!
If anyone has any suggestions on coping mechanisims or therapy i would be really grateful. I've been trying to meditate and i'm due to start physio on my neck and back to hopefully help reduce headaches.
Today is the 9 yr anniversary of my husband's passing and I shall spend it alone. Can grieve as I want to with nobody telling me to just stop it, you are so annoying today, well if you want to cry today that's your choice but wouldn't be mine, you bring this on yourself, get over it already, why do you put yourself through this every year, you are crazy to still be grieving, trust me my friends...
by: Alison Miller Link: LINKWidows scare people, I think. Even if they (we) are ordinary in appearance. No warts on our long noses. No narrow, scraggly, fingers with sharp nails (for poking). Oh, wait. I'm describing witches. We do (sometimes) wear black though. Like witches in the storybooks do. And I do believe that we frighten people. Family people and strangers...