I have several messages posted on this site and looked at the literature and just like one of the earlier posts, it just snapped into place when I read the symptoms. Like I had just stumbled upon the answer...not the solution unfortunately, that does not appear to be anywhere out there, if in fact it is Dercum's. I have contacted my Rheaumatologist, but I suspect he is not familiar with this. Have asked him to provide me with someone that might be familiar enough to dx it, but have not heard back. I think an endochronologist is the best person to diagnose it. Does anyone have any thoughts or suggestions about this? Would love to hear back from anyone as to opinions and even self diagnosing tips. Thanks so much.
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