i can't advise on this but i hope he gets well soon and bump!

I'm sorry no advise either-just wanted to wish him well soon. xxx

*sending good thoughts your way*

thanks archetype, im just so upset, everytime i think i have a handle on things, everything goes to hell....

im so sorry this is happening, i cant advise as ive no knowledge of this but i wanted to let you know im here if you want a natter. ive 3 kids of my own and i know how hard parenting can be at times. hugs to you xx

Oh my. I'm sorry that your little one is not well. It's hard when a child is sick! My youngest son had alot of health problems when he was smaller. Thank goodness he grew out of it. That was a hard time in life!!

so sorry to hear that the baby isn't well...it is not fair that someone so small should suffer. wish i had some advice to give, but i'm here to listen...hugs to you

I feel for you and your baby. I was diagnosed with epilepsy at age 2 months. Siezures suck cow cookies. They hurt and leave you confused afterwards.

thanks guys...this really does help....its hard watching your child go through such awful stuff and there is nothing you can do about it....i often wonder if someone else would be doing a better job in managing his medical problems without having to deal with depression at the same time....im running out of steam....

jann, don't ever doubt yourself...you are loving and giving and this is your little boy...no one could do as good a job as you...i do understand about being worn out, though. when my son was little his asthma was terrible, my goal was to keep him out of the hospital and that involved many long sleepless nights...i also had a terrible time with the school system, i spent many days crying...

I wish I had some advice, but all I have are gentle hugs & prayers.

Why would he be on four medications for seizures instead of one or zero?

I'd be less trustful of adverse drug interactions and more attentive to changing the lights, sounds, touches, foods, smells, substances and whatever is present in your household that is lowering your child's seizure threshhold.

i know!!! my goal right now is keeping him out of hospital, because its harder there....im just hoping that he is stable soon...thanks guys so much for your support...

its a great point capncrunch...one i have struggled with for some time now....we are in the process of weaning him off of one....

his siezures were really out of control...and he was spending weeks in hospital with daily siezures when he was off of meds, at least now he can be at home and has only a couple of siezures a week....

we have considered lights and sounds for a trigger and there doesnt seem to be any....at least none we can see.....
i question eveyday if things are being done right, but i have full trust in the team of specialists we have....its just so hard to cope with...

Hi Jann
Sorry to hear about your little one, is he on meds for the siezures. Its so hard watching your child go through terrible things like that, my lad has had many health problems over the years, and in and out of hospital countless times. It does get you down, i'm surprised your hubby isn't more supportive. Does your child have other health problems as well as the siezures.