Deep Vein Thrombosis (DVT) Support Group

Deep-vein thrombosis, also known as deep-venous thrombosis or DVT, is the formation of a blood clot ("thrombus") in a deep vein. It can be caused by something preventing blood from circulating or clotting normally. Join the support group if you are coping with DVT and find others who are going through the same challenges.

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UK Blood Clot Awareness Campaign

RetiredNavy02
RetiredNavy02
Here's a link concering some information about a bloood clot awareness campaign going to take place in the United Kingdom:

http://www.eveningstar.co.uk/content/eveningstar/news/story.aspx?brand=ESTOnline&category=News&tBrand=ESTOnline&tCategory=xDefault&itemid=IPED25%20Feb%202009%2016%3A43%3A15%3A913

Just wanted to share this with you all! This same initiative is taking place throughout Europe by AntiCoagulation Europe (www.stoptheclot.com). Please note the web address, not to be confused with www.stoptheclot.org which is for those in the U.S. (completely different organizations) Now I should note that this initiative appears to be brought to you by Sanofi-Aventis, makers of Lovenox. The Coalition to Prevent DVT campaign was created by the same Pharmaceutical company.

Regards,
Tom in Connecticut
dero
dero
Here is another one I heard of...
http://www.thrombosis-charity.org.uk/cms/index.php
Has anybody ever heard of them?
RetiredNavy02
RetiredNavy02
Dero,

I've posted information about that organization before. I'm not sure just how active LifeBlood is, maybe some of our UK friend can answer that.

The campaign mentioned above, I believe, is an attempt to establish something like we have here in the States, March DVT Awareness Month.

How are things going on your end? Dusting off the bike yet?

Regards,
Tom in Connecticut
dero
dero
Two years ago I had talked with one of the admin of the group and what she wanted (or would like to see happening) was more along the lines of educating the existing patients and see if they could also start educating the medical community (that was where the problem lied at the time). Patient advocacy is the way to do it, it just takes times to set it up PROPERLY, ask Brenda and myself, WE know that one very well.

I will be calling the surgeon today to find out if any date has been set for me... I want it done NOW so that I will have fully recovered before the summer, know what I mean?

Well the bike NEVER did accumulate much dust, I never did let it go, but I am waiting for a confirmation from my Hemmotlogist that I am OFF the anticoags before I do anything to the rigue. Should not need much TLC since back in 2007 I had it tunned and never rode it, just have to tighten some cables and make sure I still have oil in the suspensions and brakes.



Aside from that,work, work, work...
deleted_user
deleted_user
hellooooo,

I have had quite a lot to do with the UK organisation Lifeblood...and they were very helpful to me when I was first diagnosed with PEs. My Mum and I have also done some fundraising for Lifeblood...and myself and another young clotter are attempting to raise awareness of blood clots in young people. I have also met with the executive officer of Lifeblood - who is lovely and desperate to raise awareness of clots in the UK...my story is also on the Lifeblood website! Not sure how useful this info is for anyone...but just thought i would share! :-) xxx
RetiredNavy02
RetiredNavy02
Glad to hear positive feedback about LifeBlood. Being here in the U.S. I didn't know any information first hand about them other then they were an organization much like NATT here in the States. I'm glad to see DVT awareness initiatives taking place in the UK.

Regards,
Tom in Connecticut
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