Deep Vein Thrombosis (DVT) Support Group
Deep-vein thrombosis, also known as deep-venous thrombosis or DVT, is the formation of a blood clot ("thrombus") in a deep vein. It can be caused by something preventing blood from circulating or clotting normally. Join the support group if you are coping with DVT and find others who are going through the same challenges.
I am new to this group but not to DVTs. I have had 5 since 1995 with 3 of those being while on coumadin. My last one was in October. My levels have become harder and harder to keep control of and I am on 10mg daily. My dr has taken me off of all vegetables and most of the foods higher in K and restricted how much of anything else I can have. I guess my question is has anyone on here failed coumadin and had to go onto lovenox long term? The diet is creating other issues with lacking other vitamins in my diet. Also I am seen by the VA and recently moved from Tucson, AZ to Oklahoma City and the Drs seem to have conflicting advise. In october I was actually D dimer negative and still had a new active clot per their method of testing and here they refuse to scan unless you are d dimer positive, also was told not to wear compression stockings as this could push an ndiagnosed clot to the lungs and here they want me to wear them. I am so confused wish I could find great dr to handle this but don't know where to look. Any help or ideas would be gretly appreciated. Thanks and sorry this got so long.
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My boyfriend and I have broken up a few times but keep coming back. The first time lasted three months we were magical but also hell, Id say basing it on a friendship first was important to me, he'd call me a prude, i'd ask him to stop talking about his ex and he'd call me an evil bitch, later apologising and claiming it was stress and ptsd from his last breakup [That chick was evil] , after we...
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So I've been giving myself space and he has basically been me... asking why this and that and not understanding why I'm like this or that... I'm gone be nice and ease up and allow him to try "fixing it" but I've heard this sooooo much that it's routine and I want allow my guard to be down (and it's really sad my gard got to be up with my own husband)... act like the husband/father I'm supposed to...
Sarah
Thanks, I will let you know as I found out more info. I hate not being able to eat any vegetables and I have just been frustrated with the situation. I have dropping low more frequently since october before my last DVT and my dr now doesn't seem to want to be very proactive with adjusting the dosage. I also started out on 5mg but that has been over a year ago and that doseage didn't work for very long. I had a break after my first two as I was going through cancer treatments but once my platelets were back to normal I had issues again. Any ways glad to know I am not alone, not many people to talk about this with.
Jennifer
My INR was always low for months and it has only been within the last few months that my INR has been consistently therapuetic. But still sometimes, it just bottoms out. But I still eat veggies. I just eat consistently so that I'm not binging on greens. Some people have a tougher time and need a high dosage of warfarin;I'm on 15 mgs a day. That's what my body needs to be therapuetic. Doctors who are inexperienced or conservative freak out when they have to give a dosage over 10mgs (mine did initially until she talked to my hematologist). My hematologist says who cares what the dosage is as long as your INR is therapuetic? Everyone's body is different. It's not about the dosage; it's about the INR.
Also my personal opinion is probably different from others, but I do think dosage matters. I know from the perspective of INR it doesn't, but that's just one little piece to the whole machine which is our body. The body still has to process the stuff, the liver in particular seems to always be affected by medications. Almost all of us here complain about side affects from warfarin, so I just can't believe that dosage makes no difference at all to our general well-being.
Please let me know how the hematologist goes. My doctor yesterday indicated that since I'm having problems that I really need to see one.
When you say VA, I assume you mean Veteran's Administration Health Center; is that correct?
Have they tested you for any of the known clotting disorders? Reason I ask is some of the clotting disorders "may" require a higher INR to make you therapeutic.
If your problems are with the Veteran's Administration Hospital, please email me through this support group, I may be able to provide some help. Even if not, I may be able to find a specialist in your area who does specialize in clots and clotting disorders.
Regards,
Tom in Connecticut
I have an appointment with my GI doctor in a couple of weeks and since his expertise is the gut and the liver, I'm going to ask him about the effect of warfarin and specifically, the higher dosages on the liver.
Several doctors have told me that typically, younger people require higher dosages of warfarin that older people to remain therapuetic. I find that interesting.
Right now, I'm struggling with my INR being too high. This is a new thing for me, as I've always struggled with keeping it above 2. I started dieting 3 weeks ago, just eating smaller portions and small, frequent meals vs 3 large meals a day, and since then, my INR is through the roof. I eat the same food I always ate, just less of it and yesterday, my INR was up to 6.3. So, there's more than vitamin K and dosage at play. Activity and over all total food consumption impact INR too.