Well I just got the genetic test results on the test that they could run while still on the Warfarin..(finally), I am homozygous on factor V Leiden which is apparently not great news. I have two copies in my genes, This is bad because my Dr. stated that my kids are going to be at least positive heterozygous (one copy), or homozygous like I am. I will be a Coumadin lifer now according to the Dr. I HAVE A 50 - 100 fold increased risk of clotting, If my kids only have one copy they will have a 4-8 fold increased risk. I am so sad about this and am just realizing how much life might change but I am mostly sad for my kids. My daughter, my oldest has used the NuvoRIng to regulate her cycle. Luckily she is OK but when I think about what could have happened it really scares me. For some reason, I really did not think I had any genetic issues since childbirth and surgery were involved in my clots. Has any of you tested homozygous (two copies), on Factor V Leiden? The Dr. feels that this genetic disorder is why my DVT is not resolving even though it has been over five months and why it is so large. Any advice from anyone who has this? I guess this means I should find a hematologist? Thanks.
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