Cystic Fibrosis Support Group
Cystic fibrosis, (CF) is a common hereditary human disease which affects many different parts of the body, including the lungs, pancreas, gastrointestinal tract, reproductive organs, and sinuses. This support group is dedicated to those coping with cystic fibrosis. Find support, meet others who face the same challenges, ask questions, and share your experience.
My 13 year old daughter had Cystic Fibrosis with MRSA and Type 2 Diabeties. Her health has declined to the point that she can no longer attened school. So how do I homeschool her and still provide finacially? And how do I maintain health insurance for my own numerouse health problems if I am not working? I am lost and scared.
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I have had Ttp twice this year I'm 48 my doc said the next time Ttp happens they will take my immune system. Has anyone had this done? Does it work ? What other problems do u get?
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theatre and I are there already. I'm having a very berry tea with crackers, cheese and cherry tomatoes and she's having a joint with some beer and we're both on really comfy recliners on thick pile carpet. we need some help with the decor if anyone is around??
About your dilemma, I don't know what Ohio has to offer, but I do know California has a program called GHPP, Genetically Handicapped Persons Program. I have no idea how long you have to live in California before you get to participate, nor do I know if such a program exists in Ohio. But I do know that we used this program for a time when I was at a different job making less money, and it helped reduce many doctor's bills significantly. Unfortunately this only applies to your daughter, I don't believe this would apply to you.
http://www.dhs.ca.gov/pcfh/cms/ghpp/