Cystic Fibrosis Support Group
Cystic fibrosis, (CF) is a common hereditary human disease which affects many different parts of the body, including the lungs, pancreas, gastrointestinal tract, reproductive organs, and sinuses. This support group is dedicated to those coping with cystic fibrosis. Find support, meet others who face the same challenges, ask questions, and share your experience.
My 13 year old daughter had Cystic Fibrosis with MRSA and Type 2 Diabeties. Her health has declined to the point that she can no longer attened school. So how do I homeschool her and still provide finacially? And how do I maintain health insurance for my own numerouse health problems if I am not working? I am lost and scared.
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I miss traveling with my husband. Has anyone found a specific site regarding cruising for widow/widowers or any sightseeing trips. Not interested in being with couples and kids,,,I realize a cruise ship will have a portion size of families and couples, but perhaps they also put together a part of the cruise ship for groups of widows/widowers????
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A friend sent this to me..As far as I can see, grief will never truly end.It may become softer overtime, more gentleand some days will feel sharp.But grief will last as long as Love does - ForeverIt's simply the way the absence of your loved onemanifests in your heart. A deep longing accompaniedby the deepest Love some days. The heavy fog mayreturn and the next day, it may recede.Once again, it's...
About your dilemma, I don't know what Ohio has to offer, but I do know California has a program called GHPP, Genetically Handicapped Persons Program. I have no idea how long you have to live in California before you get to participate, nor do I know if such a program exists in Ohio. But I do know that we used this program for a time when I was at a different job making less money, and it helped reduce many doctor's bills significantly. Unfortunately this only applies to your daughter, I don't believe this would apply to you.
http://www.dhs.ca.gov/pcfh/cms/ghpp/