
Cystic Fibrosis Support Group
Cystic fibrosis, (CF) is a common hereditary human disease which affects many different parts of the body, including the lungs, pancreas, gastrointestinal tract, reproductive organs, and sinuses. This support group is dedicated to those coping with cystic fibrosis. Find support, meet others who face the same challenges, ask questions, and share your experience.
After that, I recommend a job, with excellent benefits, maybe a government job, especially one with a union. I'm not sure how true this statements is, but I was told that health insurance companies can deny your meds and such because CF is considered a pre-existing condition...
My boyfriend has CF, and he works for UPS, he has AMAZING health insurance. They cover 100% of almost all of his meds and dr visits. His creon, pulmozime, albuteral... (everything except the sterile water!! But whatever about that) He got blood clots recently, and he got 3 months of lovenox shots, they cost like $8000, he paid nothing, not a freakin penny!!!!!!!!!!!!
When he goes into the hospital, and sometimes when he comes home with a pic line in his arm, he can't go back to work right away... He gets disability, and all, no real problems with his job... but he only works part time, and he doesn't really like it...
Then again, who knows what the situation will be in 18 years, ya know?! Hopefully they will have found a cure, and it won't be an issue :)
Leisha
Emily
~hugsnkisses