
Cystic Fibrosis Support Group
Cystic fibrosis, (CF) is a common hereditary human disease which affects many different parts of the body, including the lungs, pancreas, gastrointestinal tract, reproductive organs, and sinuses. This support group is dedicated to those coping with cystic fibrosis. Find support, meet others who face the same challenges, ask questions, and share your experience.
You cant get away that easy...we want more details on your transplant as Im sure others on the site do....what was it like getting the call? how was the recovery? How do the immunosuppressants make you feel? Great news for you and so glad to have you on the site
Dr O.
I also got a new inhaler called seretide from GSK which was developped for asthmatic patients. It is useful in approx 10% of CF-ers, this one did my FEV1 jump up quite much. It really gave me extra air.
Another thing which helped me breathe better and I know it is controversial is inhaling L-arginine. Think what you want about it, for me it increase my saturation rate by 1 or 2% and my heartbeat therefore is not so rapid (I was always above 100 in rest). Now I have an avarage of 80. Read the article in link below. I can send full articel if interested.
http://ajrccm.atsjournals.org/cgi/content/abstract/174/2/208
For those of us in the US seretide (the previous writer mentioned) is ADVAIR...a mixture of fluticasone propionate (inhaled steroid) and salmeterol (beta agonist)
GREAT news that that helped you...keep us posted
Dr O.
Bananas, rice,rice pudding, apples or applesauce, and toast good luck everybody
Affectionately, Brenda in AZ
"The kombucha scoby" The kombucha culture looks like a beige or white rubbery pancake. It's often called a "scoby" which stands for "symbiotic culture of bacteria & yeasts".The culture is placed in sweetened black or green tea & turns a jar of sweet tea into a jar of vitamins, minerals, enzymes & health-giving organic acids.
"Kombucha & your health" Many health claims are made about kombucha. It has been shown to have many antibiotic, antiviral & anti fungal properties in lab tests. There is a lot of experiential evidence from people who have been using kombucha over many years. Kombucha lovers & drinkers have claimed a massive list of ailments & sicknesses which have been helped or "cured" by drinking Kombucha tea on a regular basis.Many of the benefits reported include improvements in energy levels, metabolic disorders, allergies, cancer, digestive problems, Candida's, hypertension, HIV, chronic fatigue & arthritis. It s also used externally for skin problems, & as a hair rinse. (results vary)
"It isnt really a fungus, or a seaweed or a mushroom" The kombucha is not really a mushroom as it is sometimes called, but rather a symbiosis of yeast and bacteria, That need each other, that benefit from each other & that protect each other.
***The kombucha is a tough, smooth slippery, glassy mass which forms lamellae. These lamellae are composed of translucent, very tough tissue with a series of brown slime spots at the bottom & in the tea, These turn out to be a concentration of yeast cells.
This tea has been known for over 2500 years.
It costs almost nothing, if you make this beverage yourself.
Each batch you make grows a new culture/scoby (mushroom), sometimes separate, sometimes as another layer on the original one (Just peel them apart if desired). the baby will grow across the top of the tea to the size & shape of the jar, you then have two cultures & can brew two batches next time.