I've now had my second appointment with my GP. I kind of understand what he is saying in his office, but I come home and I am completely confused by all the terms etc. Blood result showed high ACTH. MRI revealed asymetric pituritary. But when they did the morning blood test and compared levels with the afternoon blood test, I got lost. Doc says cortisol levels were low in am, and really low in pm. Muscle weakness, fatigue, weight gain, decreased vision, muscle aches, etc. I just don't feel well. My life is spinning and mentally I can't seem to get a handle on it. I don't go out much because the sweating is so bad i sweat through my clothes, my pants, etc... I'm not understanding all the terms the doc is throwing at me, and when I ask him to explain, it is still confusing. He doesn't think I have Cushings. My GP says there are no good endo's in town that my insurance cover. He says he will work through this with me, but tells me he doesn't understand all of this stuff very well either (but he finds it all very interesting) and asks me to be patient with him. Anyone have advice? If I list my labs can someone explain them to me? (My doc just spends our apt time staring at the computer screen searching for what test to run next, and reading up on the disease.
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