I have had Crohn's Colitis since Summer 2008. It was so terrible that they dare not even do the colonoscopy properly, they put it in a few inches and had to stop. The disease has not responded to anything, not steroids, or antibiotics, and the infliximab only worked for 3 months and now I am in a major flare up again. Humira is not licensed in the UK for Crohn's where I live. I am 25, I am a musician and I am going to University in September this year. I am terrified they will want to remove my colon and give me a bag, I would rather die than have that for life with the prospect of it coming back anyway even with that. My granddad died in 2002 from it, he had a bag all his life and eventually they cut so much gut out, he died of malnutrition and deficiency, and suffered abcess, stricture, fistulas and 9 surgeries. My sister also has it really badly and they are on about surgery for her too. I have spent my whole life suffering sexual abuse from my father and only in 2006 did he finally go to prison and I was released from my 23 year hell. Now I feel like my whole life is over again with this disease. Will I be able to go to University if I have surgery, what if they want to do it in september and it spoils it for me? I have dreamed of a career in music all my life and it seems likely I will get it if I can just do this degree. Oh God I am so sorry this is so depressing, I have never been so afraid in my life.
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