Well, I am thrilled to have found my way here. I was diagnosed in November after my dad passed late September. The doctors do not think it is related, but I don't see how its not. I became symtomatic pretty much the day I had Daddy's memorial. It has not let up since. I have been hospitalized 4 times, had 2 colonoscopies, multiple CT scans, and IV antibiotics every time I go to UAMS. Now we are facing the fact that I have strictures throughout the intestines, several fistulas within the intestine and even some to my bladder. GROSS! THAT is why I feel like I have a bladder infection! So I guess the 60+ horse pills I take a day are not helping huh? WOW...$1000s, all that time, effort, throwing up cause they are so gross and HUGE...wasted!!! I could just scream! So we are waiting for the surgeons to make their call and then after surgery I will be on Remicade or Steroids or both. I know he mentioned both, but I am not sure if you take them together or not. The most troublesome thing of all of this is that I have been on Oxycotin since November, Morphine when I am hospitalized, and my doc treats me like an addict! It hurts, and at times I am terrified that he will not refill my script. If he didn't I would addmit myself right then. I have 3 kids to take care of and I am in pain 24/7 and that is even with 10mg Oxy every 4 hours. Hello! Who cares if I am an addict. That is not really the issue right now, ya know? This pain is unbearable...it makes me throw up, lay in bed half the day, and some days my kids are like, "MOM I am serious, we are hungry! We have to eat even if you can't, you haven't fed us all day!" So, any suggestions on the pain issue? I need some support and I will gladly talk to folks on the phone or by texting...just call me anytime. I noticed alot of you talk about calling each other. I love to talk on the phone so call me up! (501) 545-8051 that is my cell, and I have Alltel. I also have unlimited text so we could do that too! Thanks alot, hope to hear from someone!
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