I have gone from being a stable, proffesional (Medical at that) to being afraid to go to far and always looking to find out where the bathrooms are. I've messed myself more times than I can even count now, including at work while I was drawing blood on a patient. I had no choice but to stop working over a year ago now. I just turned 33 and went from running around with and being very active with my children to being in bed most of the time. No one seems to understand the amount of pain that I feel every day, not to mention the inability to control my BMs anymore. I hear all the time of remisson but have not been fortunate enough to experience it myself in the two and a half years since I was diagnosed. I feel that I have lost hope for a remission. I very seldom eat as everything makes me sicker and yet, the steroids have made me gain a ton of weight. My family and friends try to help, but thank God, they have no idea of the amounts of pain and discomfort I am feeling. I have lost friends due to the changes in me since I have gotten so ill. I am no longer the fun, silly, outgoing person that I was and that scares and worries many. Sorry for the long entry but wondering if anyone else is experiencing any or all of this and if there is any advice that could help me become a "normal" person again.
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