So, its no big secret that our GI's will NOT prescribe pain meds for Crohn's. Even though it is quite debilitating during active flares and depressing as hell due to having to stay in the bed or bathroom in chronic pain. For me, pain has been a MAJOR issue. I have been in an active flare for 2 years and have had multiple hospitalizations just for pain alone. I have tried to find pain management docs to treat Crohns and have had no luck. Finally, I did find a doc...appt is tomm. Very nervous, my medical records are littered with things like "narcotic bowel syndrome", suspected narcotic abuse and so on. I legitimately need to be on a pain regime to function. I have 4 kids and a husband, without pain management I cannot get out of bed to help with anything. Not to mention that my 2 older children are in baseball and soccer. I cant even travel to there games due to incontinence and/or pain. I just have a bad feeling that this doc is going to be no different then the rest of condescending jerks out there. It just seems so unfair that our GI's cant manage the pain aspect of the disease...it baffles me quite frankly. If anyone can understand or recognize the pain associated with crohns...shouldnt it be them! Anyway, I wanted to see if anyone had tips or advice for my appt tomm. I feel like this doc is my last hope. I need some normalcy in my life...and some quality would be nice also.
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