Crohn's Disease & Ulcerative Colitis Support Group

Crohn's disease is a systemic inflammatory bowel disease (IBD) of unknown cause, that results in chronic inflammation of the intestinal tract. It can affect the entire gastrointestinal tract from mouth to anus, and can also cause complications outside of the gastrointestinal tract. There is no known medical or surgical cure for Crohn's disease, but there are many medical...

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Losing My Hair

deleted_user
deleted_user
Hi guys, I just got off of prednisone last week, which was causing hair loss. Unfortunately, I started Immuran about 2 months ago and it's causing even more hair loss. I know it is common with these meds, but am wondering if anyone has any advice to help? Any advice is appreciated. Thanks!
deleted_user
deleted_user
I've done both drugs in the past. Now I'm on Remicade, Pentasa, and Entocort. I still have hair loss.
I also believe that the nature of crohn's is to rob nutrition and that has an effect on hair loss.
My hair dresser says she can see some new growth so that is good.
I wish I knew of something that would help but unfortunately I don't.
If you hear of anything let me know!
I wish you well.
deleted_user
deleted_user
Imuran made me shed also. I had to get off it after two months due to side effects of fatique and pain.
deleted_user
deleted_user
It did the same to me. I wish I had some advice about how to help. It does suck. I am so sorry that you have this side effect too. Hang in there.
deleted_user
deleted_user
Thanks guys, I have been having a lot of fatigue and joint pain as well. My doctor is taking me off of it for 2 weeks until my next appointment, then we'll discuss what new meds I'll be trying....Thanks again for your replies!
deleted_user
deleted_user
i know when i was on prednisone i lost some hair but it wasn't from my head but from my legs..i wish i could give you some advice on that but i couldn't even figure that out myself..
deleted_user
deleted_user
Hey K,
If the joint pain gets too bad and interfers with your quality of life - ask you doctor about Remicade infusions. It gave me my life back!!
Everyone is different but this drug helped my crohn's and relieved my pain without all the weight gain and other stuff that goes with prednisone.
It won't help the hair loss though. I still have that. Gone is that lovely thick head of hair I used to have.
I wish you well.
redsilverfox
redsilverfox
kp you can peripheral arthritis from crohn's check it out at a Rheumatologist DOCTOR!!!!
deleted_user
deleted_user
I am sad to say that I don't have any advice for you either, but I will tell you that I am losing hair also. I don't know what it is though. I have been on the prednisone since May, and the hair loss started recently. I think that it may be stress. I honestly don't know what to do either.
deleted_user
deleted_user
I am on pentasa and enocort and have suffered badly with hair loss just the other week all my hair off the floor burnt out the hoover whoops!Went to the doctor last week and they said the pentasa can cause hair loss so have changed my tablets.But sadly like everybody else i have no solution to help you we will just have to keep our fingers crossed that it grows back
deleted_user
deleted_user
look up the low dose naltrexone site (LDN). They are doing studies as to why this cheap drug cures Crohns
deleted_user
deleted_user
Remember--that is Lowdosenaltrexone (LDN). You won't find out about it curing crohns in 3 weeks by calling up the naltrexone site.
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