Last year our school year started with my son, Darrell pasing blood in his stool. At first they thought it was an infection and advised me to keep him out of school until it cleared. It turned out it was a false positive for C-diff. Then with all the pain and continuous Dr visits, he missed more school. Then he was diagnosed with Ulcerative Colitis and was started on meds....the meds he was prescribed made his symptoms worse. so again he was missing more school. By this time the school was starting to get pretty nasty with me, saying that he NEEDED to be there no matter what. Not only was Darrell in pain quite often, he was having a horrible time in the morning and before bed .I would give him tylenol and put him to bed at 8:30 or 9pm, and wake him at 7, but he just couldn't get up....always complained of tummy pain. I would let him sleep, he would usually wake up around 10 and be fine. So the school said that I should bring him in at 8 anyway and he could sleep in the nurses room. WHat upset me about this is, why does it matter if he is sleeping there or here?? He is still not going to be in class...I felt it was more that they just wanted to be able to count him as there to help them out. The comfort of my child was more important to me, and I continued to let him rest at home. His teacher was complaining that he was behind, which he kind of was....but I was doing all his missed work with him at home, adn his grades were not suffering. SHe said she is a "hands on" teacher and he needs to be present to learn from her. Again, I did not see her looking at HIS best interest.....but maybe Im just partial because I am Mom. Then in May, after 3 different Dr's we got admitted into the hospital and diagnosed with Crohn's. New medicine was started and all seemed to be doing well. He was doing better and attending school, but he only had a few weeks left at that point. This summer, he did great, no real problems, no major flares. Now school has started again, and the pain at night and in the morning is back. He is crying himself to sleep everynight and crying in pain in the morning. I guess someone my Mom knows has a daughter who was also diagnosed at a young age, and she went through the same thing.....summers were good then the school year was painful again. I am at a loss for what to do......does anyone else go through this? I know the school is going to get on us again for the continued absences......Last year I even had him going to a counselor, thinking that maybe the pain was more mental (him being nervous about school or something) than physical, but she said she didnt think it was.
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