COPD & Emphysema Support Group

COPD is a progressive disease characterized by airflow obstruction or limitation. Emphysema is characterized by loss of elasticity of the lung tissue, destruction of structures supporting the alveoli and of capillaries feeding the alveoli. Both have symptoms that include shortness of breath, among other respiratory troubles. If you are a COPD or Emphysema sufferer, join the group and find support.

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urge to urinate

This is kind of a delicate subject I guess. But I've noticed that when I'm really out of breath i get this huge urge to urinate. Is this normal? Also, does anyone sometimes feel that they may be hyperventilating?

Replies

kaput
kaput

Yes, this is normal. Talk to your Dr. about it. It happens when you're really SOB & it's a natural response to that. Are you on O2?
deleted_user
deleted_user

Yes I get that urge, then I cough and Thank God for poise.
SimplyDani
SimplyDani

I have it, too, but unfortunately with me it's both urinary and fecal. I don't have as a rule stress incontinence- I don't really have problems with coughing or laughing, but just specifically with the shortness of breath that accompanies exertion. I've noticed it also seems to go both ways because if I've dawdled and absolutely positively need to get to the bathroom now (you know- the famous, let me just get this done first and then I'll go), I notice that it increases my shortness of breath.
deleted_user
deleted_user

Yes, I'm on CO2, don't have stress incontinence either, Have had a couple times with fecal, when I'm out of breath, but didn't figure that was it. was more like loose bowels. Haven't mentioned this to my doc because he's not very easy to talk to.
moonsky
moonsky

Glad to know other people with copd have this problem...
deleted_user
deleted_user

Yep. Me, too. Especially when I'm short of breath. In fact, for me if it lingers, usually it's a sign I'm headed for an exacerbation. Kind of a warning signal.
deleted_user
deleted_user

Me Three.... I always thought it was because of a high heart rate that I get when short of breath. Also someone gave me advice here a couple years ago to get rid of bad air in your lungs and blood Breathe in (singing amazing grace in your mind) then breathe out ( how sweet the sound) . That is supposed to be the right timing for getting out the bad. Seems to work for me very calming. Whoever gave me that advice is a genious. Thank you!
deleted_user
deleted_user

I know I have come to the right place, I have been diagnosed with COPD, for years, the past year it has become really nasty. My specialist has not given me any real information, except to quit smoking which I have most recently done, since November 2011 because of the worst exacerbation event I have ever had. No one told me what it was, the ER doc said a mucus plug maybe? Oh and today my doctor told a pharmacy sales person who I gave permission to sit in on the exam that I have severe emphysema, he didn't say it to me he said it to her! Only 2 specialists in the area that take my insurance and they are the same. Less than an hour on this site and I have answers to two major questions. The incontinence with me is really bad if I can't make it to a toilet, I gush while having sever SOB. I am not on Oxygen, at what point do they decide, he said I have sever E but didn't discuss anything else. Every time I go to him, I leave devastated or angry. Today it was much shame regret for what I have done to my life by smoking and helplessness. Much crying, but I think it will help me to read and listen to others in the same boat. I might cope better and step out of the helplessness, shame, and self pity!
deleted_user
deleted_user

Oh Volma bless ur heart. That Doc is crazy if u have severe emph u need to be on 02 if it is that bad. Go to him and ask him why he has not put u on 02 make him tell u ur pulmonary numbers and explain them to u not a student. What medicines did they put u on? If he gave u inhalers they should be helping some but more than likely u need o2. Is he a lung specialist if not make sure u go to one right away so u can start feeling better. I am on 02 24/7 for 7 yrs and I just dont feel like I would still be alive if not for the 02.Let us know. Lots of information and very nice members to help u here at DS.
Yes I do have the incontience when I get very sob from activity that is why when I go shopping I nearly always use a elec buggy or my elec scooter. I think it is a normal responce to ur body taking all the 02 from ur bowels and bladder to go to help u catch ur breath then when ur ok u lose that urgency. At least that is the way it is with me.
deleted_user
deleted_user

Volmo:

Have you had Pulmonary Function Tests? An Arterial Blood Gas drawn? A CT scan? A six minute walk? These are some of the tools needed for a diagnosis of COPD and your need for oxygen. As a patient you are entitled to have copies of these tests. I would get them and review them. If you have not had them, I'd sure look into finding another doctor.

Do you have a pulse oximeter? If not, it would be wise to purchase one. If you have Medicare the criteria for them to pay for oxygen is your oxygen level drops below 88. A pulse ox can tell you this - watch it while you are up and about, and doing more strenuous activity too, not just at rest.

Mostly though, from what you've said, I'd sure be looking for another doctor. if at all possible.

Best to you,

Joni
deleted_user
deleted_user

P.S.

Meant to mention - your oxygen saturation can drop while sleeping, too - if you wake up with headaches, or many times during the night short of breath, this may be the cause and you may need oxygen then. Not always do you need oxygen 24/7 - some just need it at night or when they are doing something strenuous. (I am one).
deleted_user
deleted_user

Thank you jamsnjazzy and birdlady for your advice and support.I am absolutely shocked honestly, I didn't realize how clueless I was about this disease until it got so bad that it is my life. And I am not getting any help from the pulmonologists I have been seeing every 6 months. It's like he ignores me, won't explain much at all and all he has done is, they use the oxygen level devise on my finger, to check the level, usually do the test where you blow in the devise and it measures it. And once 6 moths ago he had me walk down the hall and back with the nurse and I think measure lung capacity at rest and after I walked down the hall, and oxygen levels. Nothing else no MRI, none of the tests you mentioned, I have never even heard of it. Although I did go to a cardiologist even went as far as to have a catherization. I could not do the physical stress test because I couldn't breathe. The cardiologist couldn't find anything wrong or blocked in my arteries,and said that he thought I may have congestive heart failure. I didn't go back to him because of being overwhelmed, I need to, just to get his report. You know I think I will try to find anyone else, this pulmonologist after telling the pharm rep that I am very sick, in front of me, told me to continue the meds I am on, spiriva, Advair, albuterol & Ipratropium via nebulizer and rescue inhaler, and walk. He gave me a tip to use a fan may trick my brain into thinking I am getting more oxygen and that heat can make you feel like you are not getting enough? He said I will never get better, glad I quit smoking (so am I and I had no choice, it was die or live) said to come back in 6 months. I told him I had coughed up thick green mucus, he said I have a little bit of inflammation but that he wouldn't jump in and give me antibiotics. He asked me about my sinuses and I told him, I have constant problems with sinus congestion, post nasal drip etc, infections, and problems with my teeth. I need to go to a dentist but have no insurance or extra money to pay at the sliding scale ghetto dentists they have here who are horrible. I live in Olympia WA, if need be I can go to Seattle Tacoma area, to look for a specialist, there is no one here other than a bad incompetent pulmonologist, as bad as this guy. There are only 2 in this area, covering a very large area who will take medicare and medicaid. I appreciate any information and feedback and support I am in dire circumstances and have been for months. I cannot function normally at all, I struggle to barely make a meal or wash clothes dishes, going grocery shopping is a major event and wears me out. I spend a lot of time in bed, sitting, I am 57years old, single, grown children who cannot help me financially,don't help me emotionally, I think it's because they are in denial or cannot handle the reality so ignore me. I have been very hopeless preparing for death, angry sad, reflecting on my life, and I keep feeling, shame regret and question if this is all there is, it's over at 57. I want hope, I want to be able to breath and function. I would like to be able to vacuum the carpets mop the floor cook a meal from scratch without loosing my breath being unable to breathe etc. I have other health issues, arthritis, I have had to have a fusion on my neck with tow disc, and was suppose to have one on my lower back, it's really messed up but I can't do that with the state of my lungs. It's been almost a year , like 9 months of these sever breathing problems and no one is helping me, not my specialist or my physician. I didn't even know that some of this was from the COPD! Oh ya the specialist gave me this advice two times, that I am the "Turtle" now not the hare, and I must go very slow, that helps me as much as laying down and dieing helps. I told my regular MD that I had no confidence in this other MD, he acted like I was just being emotional. But I had nothing to compare my experience with, no clue and sights like Mayo Clinic.com do not give much helpful information, nor do many sights, they tell you to quit smoking but not how to breathe! When I first was diagnosed I went on the one sight COPD board, but I was not even half as sick as I am now and I just didn't learn much, I didn't have the severe problems the people on the board seemed to have. I didn't get much at all from it. What's amazing is that I am not a helpless clinging vine person nor am I mentally lazy, unable to read and study. I don't know why it's been so hard for me to understand face and get information about my own health this disease and so on. The only thing I can come up with at the moment is pure fear and denial. Well I can't deny this anymore the only thing left to fear is a horrible suffocating death, which I will avoid if I can at all! It doesn't help that I have isolated myself, because I am not the person I use to be,I can barely pay my bills I have no extra money to barely pay for gas yet do something with others, buy presents etc. By nature, I have never been a social butterfly, preferring a small group of friends and feel comfortable being by myself most of the time. But need help, support, my own family doesn't care, my kids act like I am just being negative if I try to tell them, how desperate I feel, I don't think they can handle me being sick needy and desperate,because I have always been strong, holding everything together working ans so on. A counselor will not give me enough money to pay my bills a competent doctor, or the ongoing support I really need with a chronic disease. Anyone put in this situation would feel down and out, because it is a bad situation and what I am feeling is a reaction to it. Hopefully with people who can educate me, share their experience, I will be able to get the tools I need to help myself. We all need someone, support, a hand once in a while, thank you so much for yours.(Much sincerity and tears, Sandy, AKA Volma)
KyleesNan
KyleesNan

Great advice. Jams is right about the oxygen. An oximeter will give you a lot of information about your oxygen levels. I had severe emphy for several years before my oxygen levels started dropping enough for me to require oxygen. Then I only required 02 while doing heavy activities and exercise. Now I am on it more often as my disease continues to progress. Just because you have severe emphysema does not mean you require oxygen, testing determines that.
KyleesNan
KyleesNan

They even have a little box that you can take home to read your oxygen levels while you sleep. That recordse how far your levels drop while asleep.
deleted_user
deleted_user

Usually if I am inactive, sitting laying, not walking far climbing stairs etc. I am ok, but if I try to exert myself with much of anything, lifting pushing pulling or even pulling weeds once, I cannot breathe! I told the Pul Dr this, he said nothing. The only oxy tests I do have are when I am not in distress and am sedentary for the most part, or have a frequent infection, sinus teeth lungs. I rarely if ever get fevers, and have a tendency towards low blood pressure unless I am in dire pain and then it gets high but not extremely high. I'm going to try somehow to get the oxymeter, they don't seem to be that expensive but it's all relative to how much extra after all bills are paid one has.