COPD & Emphysema Support Group

COPD is a progressive disease characterized by airflow obstruction or limitation. Emphysema is characterized by loss of elasticity of the lung tissue, destruction of structures supporting the alveoli and of capillaries feeding the alveoli. Both have symptoms that include shortness of breath, among other respiratory troubles. If you are a COPD or Emphysema sufferer, join the group and find support.

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Over-doing it???

OK....I was dx with COPD back in 2008, been on supplemental o2 at night since then..............but was able to work full time until this past March (2012)......I prolly starting slowing down prior to that, but didn't really realize that it could be COPD related........thought it was just stress.

Well.....my June flare - up really kicked my butt and its almost Sept and I have not yet recovered from it yet.............I'm beginning to think this is as good as its gonna get:(:(

This is beary hard on me. I am used to being active and am now realizing I can't do what I used to:(:(

So....my question for everyone is this.........just how much can I (you) do?? Whats gonna happen if I over-do and get short of breath (which I am without doing anything)...........will I just drop dead??

I'm not talking about running a marathon, but I would like to be able to clean my house myself (hubby has been helping way too much and I feel guilty:(:(..........I "see" things that need to be done.................they might require I get up off my butt and exert a bit of energy........nothing too strenuous...........but much more so than sitting at this computer...............and I am sure it will make me more SOB than I already am...........but will it kill me???

I just don't know what the "limit" is:(:(...............Sorry if this sounds silly or weird::(:(


~~~~restless Bear here

Replies

deleted_user
deleted_user

Oh, yeah, that feeling that you pushed too hard. I get that all too often, but far less than I used to. I'm learning to pace myself, so what used to take me 10 minutes now takes me 30 or 45.
It's more an acceptance than a learning. Today I have to accept that I can't do certain things and those things that I can do I take more time - so I can avoid that drop in my SPO2 and the subsequent SOB that comes in play along with it.
For example, my wife cuts the grass - and won't let me around without a mask because of the dust and such kicked up by the mower. I do dishes and put away groceries that she brings in. And so on.
That being said, I exercise every day trying to stave off losing what strength and stamina I have. When something is within my ability, I do it. We each have to find that "limit" and strive to keep to that edge or improve to surpass it...

Hugs,
Dennis
deleted_user
deleted_user

Thanks Denny..........I just am beginning to fell like my hubby does everything:(:( Breaks my heart.................its just so not me...........my mine wants to do things........maybe even my body..........but these lungs are just not corporating!!!! Makes me mad............sad....whatever::(

I keep thinking it will "go away"........but it isn't............and quite truthfully, I am having a real hard time accepting it........REAL hard!!!!!!!!!

I guess I need to get to the "acceptance" level:(:(:(
mamamoe
mamamoe

Ahhh Deb, I feel for ya. The reality of the diagnosis IS hard to accept. I encourage you to be gentle on yourself and do what you can but let others help you if they will and it sounds like your husband is willing. I also know for me when I'm feeling like you are now, that you need to keep talking about it and getting support.
Hang in there!
Moe
deleted_user
deleted_user

Deb,

I am on oxygen 24/7/365, I do as much as possible, I push myself as far as I can, and sometimes I do to much, where I have to stand and gasp. Each of us is different and we react to physical stress differently. Because this disease is a downward staircase, our abilities change on a continuing basis. You need to readjust to your abilities on an continuing basis. I would suggest that during your next visit to the doctor this be an issue you address with him. Make sure you don't have other health issues that could impact you. Don't give in to it. Please take care -- Bill
deleted_user
deleted_user

What is really kinda sad for me is that I have belonged to the "caregivers' group for awhile.........I joined last year when my MIL was having breast cancer surgery............figuring she was gonna need some help. Well she is fine..........87 years old and in better shape than I am:(

I read that group often and just don't wanna become one of the folks they are talking about............not that it is bad............but I just see it happening to me (hubby) and it just breaks my heart..............just not right!!!

I guess I am just on a pity pot tonight................sorry:(:(:(
deleted_user
deleted_user

Bear everyone is allowed a pity party. I have them all the time. You have the right to get mad and sad but dont forget to grab yourself by the seat of your pants and pull them up and keep going.

You sound like you a very kind and caring husband who would do anything for you so let him and dont get stressed out and enjoy it.

I had to call hospice nurse today because I did too much yesterday getting ready for hurricane. I know better but some days it just gets to you being cooped up in the house. As for as how much can you do each person is different. What I could do last week I might not be able to do today.

If you do too much and get very sob dont panicky that will make it worse. I know it is easier said then done it took me a while to learn. Do your deep breathing. Exercise is also very important when you have copd it keeps your muscles strong. This is progressive diseases that is not going away but keep trying to improve your quality of life.
deleted_user
deleted_user

Bear everyone is allowed a pity party. I have them all the time. You have the right to get mad and sad but dont forget to grab yourself by the seat of your pants and pull them up and keep going.

You sound like you a very kind and caring husband who would do anything for you so let him and dont get stressed out and enjoy it.

I had to call hospice nurse today because I did too much yesterday getting ready for hurricane. I know better but some days it just gets to you being cooped up in the house. As for as how much can you do each person is different. What I could do last week I might not be able to do today.

If you do too much and get very sob dont panicky that will make it worse. I know it is easier said then done it took me a while to learn. Do your deep breathing. Exercise is also very important when you have copd it keeps your muscles strong. This is progressive diseases that is not going away but keep trying to improve your quality of life.
deleted_user
deleted_user

Bear everyone is allowed a pity party. I have them all the time. You have the right to get mad and sad but dont forget to grab yourself by the seat of your pants and pull them up and keep going.

You sound like you a very kind and caring husband who would do anything for you so let him and dont get stressed out and enjoy it.

I had to call hospice nurse today because I did too much yesterday getting ready for hurricane. I know better but some days it just gets to you being cooped up in the house. As for as how much can you do each person is different. What I could do last week I might not be able to do today.

If you do too much and get very sob dont panicky that will make it worse. I know it is easier said then done it took me a while to learn. Do your deep breathing. Exercise is also very important when you have copd it keeps your muscles strong. This is progressive diseases that is not going away but keep trying to improve your quality of life.
deleted_user
deleted_user

Bear everyone is allowed a pity party. I have them all the time. You have the right to get mad and sad but dont forget to grab yourself by the seat of your pants and pull them up and keep going.

You sound like you a very kind and caring husband who would do anything for you so let him and dont get stressed out and enjoy it.

I had to call hospice nurse today because I did too much yesterday getting ready for hurricane. I know better but some days it just gets to you being cooped up in the house. As for as how much can you do each person is different. What I could do last week I might not be able to do today.

If you do too much and get very sob dont panicky that will make it worse. I know it is easier said then done it took me a while to learn. Do your deep breathing. Exercise is also very important when you have copd it keeps your muscles strong. This is progressive diseases that is not going away but keep trying to improve your quality of life.
deleted_user
deleted_user

Bear everyone is allowed a pity party. I have them all the time. You have the right to get mad and sad but dont forget to grab yourself by the seat of your pants and pull them up and keep going.

You sound like you a very kind and caring husband who would do anything for you so let him and dont get stressed out and enjoy it.

I had to call hospice nurse today because I did too much yesterday getting ready for hurricane. I know better but some days it just gets to you being cooped up in the house. As for as how much can you do each person is different. What I could do last week I might not be able to do today.

If you do too much and get very sob dont panicky that will make it worse. I know it is easier said then done it took me a while to learn. Do your deep breathing. Exercise is also very important when you have copd it keeps your muscles strong. This is progressive diseases that is not going away but keep trying to improve your quality of life.
deleted_user
deleted_user

sorry about this but can someone take off all but one of my replies?
bjrapp2020
bjrapp2020

debear, let me say this, it is important that you understand that your life hs changed, and you need to adjust with that change.

Do the pity party, I do that every so often. I use to live in this big house alone, doing all the housework, feeding animals, laundry, grocery store, mowing lawn, everything, and this has been just a few years ago.

My ex husband and my son live with me now, because they both lost their jobs and I made to much on social security to qualify for home health help , and it is sad, knowing whatt I use to do is now being done by others.
Mark does all the yard work, repairs, and floor cleaning. Kenneth does the grocery shopping, and helps Mark.
My brain very much wants to go out and plant flowers, but I get sob just walking a few feet, and that is on oxygen.
So I do what I can, wash dishes, fold clothes, ect.a bit of food prepareing,
Stay away from dust, so let your husband do the dusting and sweeping. you can still do the dishes. You can cook, if you do a lot sitting down, like peel the potatoes, sitting down, chop the carrots sitting down, you just have to do what you can useing as little energy as possible.
Stay away from aresols and chemicals, like hair spray or bug spray, ect. Talk over all this with your doctor, but please take care of yourself. Good exercise habits will go a long way to help you.

It has and will happen to all of us honey, we are all different, so the disease affects us different. Be strong as you can, and let hubbyd do what he can do. I have been blessed that I have not needed help with my shower ,and that I have family to help me with everything else.,, altho I can hire someone by the hour to help if I need it.
Good luck with it...
BJ
bjrapp2020
bjrapp2020

drinkcoffee, I would love to help you take off those replys, if I knew how to do that!! It happened to me twice, and I have no idea how to delete them.
Looks like for the most part issac has turned away from Florida, even tho ya'll are still in the storm. Blessings to you

BJ
joany
joany

Adjust! Adjust! When I do too much I just have to rest too much - no big deal.. As was said, eventually you'll find your limits and occasionally exceed them. Your fear of dropping dead because you exceeded your limit should be removed from your thinking - just count all the people on this site who exceeded their limits and came back to tell us about it with a vow to not do that again. Dropping dead can happen to anyone who is living, but we are expected to avoid stepping in front of the bus or moving the refrigerator. I do think I need to be as active as I can - no more, no less. Okay....
deleted_user
deleted_user

Well said, Joany....