i have copd and am now dealing with complete and overwhelming exhaustion. spend most days and nights sleeping or napping. feel like my life is passing me by.
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As I was backing my car into my driveway after a beautiful late summer drive in the countryside of NH today, my PA (Physicians Assistant) from Beth Israel Deaconess Hospital in Boston was calling me. At first I was a bit apprehensive to answer it knowing that she's calling to let me know that I didn't qualify for the procedure. All of you are the first to know that I have been accepted for the...
turns out I have Churg Strauss.......not sure if it's better or worse!!
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I had to have a lung biopsy, and I have cancer. A very rare form that doesn't have any standard treatment. There just isn't a lot of case history for this. It is epithelioid hemangio endothelioma. The cancer support group doesn't talk every day. I can understand why. I'm waiting for the oncologist to call back for an appointment, and will hear in the next few days. Who knew. Ha!
Today is my 25th birthday, to my somewhat lack of surprise I can see already no one really seems to care. I've always been the kinda person to make sure that everyone I Care about feels appreciated and knew somebody had their back. I can count 4 times this year when I Went out of my way to make sure a "friend" felt good on their birthday, especially if they got left hanging. Its early in the...