Congenital Heart Disease Support Group
Congenital heart disease is heart disease in the newborn, and includes congenital heart defects, congenital arrythmias, cardiomyopathies, and hypertrophic cardiomyopathy (HCM). CHD can describe a wide variety of different abnormalities affecting the heart. CHD occurs when the heart or blood vessels near the heart does not develop properly before birth.
I was just wondering how many of you or your children get them. I have always gotten them. At times they are way worse then others (ex. if i move or breath it burns and feels like i have a knife going through my chest) before my worst ones would only make it hard to breath now its breathing and pain in my back. I asked my doctor about this when i was 12 and she said i was growing and that it should stop in the next year or soo (teen as girl right) well its been 6 years sense i was 13 and they are just getting worse. I dont take medication and i no ill be due for another surgery in the next 5-10 years. It was my 17th year celebrating my Open Heat surgery on the 7th of novemeber. But i want to no if this is what others get or because its getting worse should i go in and get more tests done, i mean i just had a check up not to long ago (april). Im scared to go to my next one as i transpherd to the childrens hospital to an adult heart hospital.
Goof
get an echocardiogram done...I did in Sept and that's when I was told about my 2nd heart defect...never knew I had it...if my chest pains get worse I was told to go straight to the ER...dont mess around with this...get it re checked asap
deleted_user
haha last november i sat in ER for 7 and a half hours!!! for chest pains and i told them i have a heart defect!...didnt help that i went to a hospital that was extreamly buisy with other people having chest pains or some freaky thing happen
Goof
dang !..youw ould think that chest pains would be a top priority...that's scary !!!...can you schedule an echo with your regular Dr ?...I now wear a medic alert bracelet...in case I pass out...all my medical info is a phone call away...
deleted_user
haha if i wear a medi as well. I didnt for like 5-6 years then i went on a trip on my own and to go on this trip i had to have one soo i got one and i hardly ever wear it...i pass out i pass out, and when they open my shirt to do cpr and dont see a big scar thats there problem not mine. Im tarrified of letting people no i have a heart defect. I just had the stress teat, the eco and ecg done in april they saw my normal leak and they hurd my normal mumar and stuff (i miss a beat here and there and it stubbles andlot and then it goes slow then goes fast stubles and you get the drift). I have about 8 medical hards in my wallet cause apperently im "high risk" cuz i still ahve this problem. haha funny story pof that night at ER..a man came in bleeding REALLY bad and the person at the front desk goes "sorry people with chest pains go in first" UMMM hello look at me. In class i was sitting there my right arm went numb and tingaly i sat through it my neck hurt my fingers were tingaly im like meh its not my left arm im fine
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theatre and I are there already. I'm having a very berry tea with crackers, cheese and cherry tomatoes and she's having a joint with some beer and we're both on really comfy recliners on thick pile carpet. we need some help with the decor if anyone is around??
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I'm trying to exercise daily. I was doing fairly well until I sprained my ankle 2 weeks ago but now I'm getting back on the horse. Today I walked over a mile with my arm weights that are about 22lbs total. I was out of shape and it was hard on my arms. I also did my 30 situps. I'm also going to drink a lot of water and try to eat healthy. I do tend to have a sweet tooth but I'm cutting...
