Just diagnosed with CVID, could they be wrong?
I a 37 year old nurse. My doctor sent me to a rhumatologist because of weakness and pain in my joints. She did blood tests and found my immunoglobulin A to be 27 and immunoglobulin G was 400. I also have vitamin B12, D and potassium deficiency. I am extremly tired and my body aches if I do anything physical. I went to an immunologist who said I had CVID. He wants me to start IV treatments in two weeks and I am worried what to expect. Does anyone know how often this is misdiagnosed? What should I expect from the treatment? My family thinks they are wrong because I "dont seem sick to them" It is very frustrating and is happening so fast I would love someone to talk to who has been there. thanks!
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Hello everyone. I will quickly tell my story since this is my first post. I was diagnosed with CVID in 1980, when I was 23. I was giving blood, and I am A+. They discovered I had no Anti B, which I should. This led to the diagnosis. It wasn't until later I started to get pneumonia, in the later 1980s. Got it every few years, then every year. Every doctor I went to get all excited...
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