Just diagnosed with CVID, could they be wrong?
I a 37 year old nurse. My doctor sent me to a rhumatologist because of weakness and pain in my joints. She did blood tests and found my immunoglobulin A to be 27 and immunoglobulin G was 400. I also have vitamin B12, D and potassium deficiency. I am extremly tired and my body aches if I do anything physical. I went to an immunologist who said I had CVID. He wants me to start IV treatments in two weeks and I am worried what to expect. Does anyone know how often this is misdiagnosed? What should I expect from the treatment? My family thinks they are wrong because I "dont seem sick to them" It is very frustrating and is happening so fast I would love someone to talk to who has been there. thanks!
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I have had 7 monthly IVIG treatments. My IgG was up to 580 from a low of 243. I was having a lot of good days with fatigue being manageable. I have hit a brick wall: a day or two of sleeping 16 hours then more frequent fatigue and recently overwhelming exhaustion after mowing or cleaning the grill. I'm looking for anyone who has experienced this. I don't know if this is disease or depression or...
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