I don't know of any other treatment but my doctor keeps me on antibiotics twice a day. I'm still not 100% but it helps. You have to be very proactive also. Keep the dust to a minimum, avoid anyone who is sick or has "allergies" (everyone says it's allergies and then a week later you find out they are sick with the flu). Wash your hands constantantly or use hand sanitizer. Basicly live vitgailantly. I get tired of it sometimes but you have to to stay well. I work as a nurse on a respritory floor. I have patients everyday that have pnuemonia or TB I just have to be very careful about exposer.

Also you need to really pay attention to your body. I usually can tell when I start getting sick and call the doctor immediately and get a stronger antibiotic to stop it before it gets very far.

In addition to IVIG, you must take precautions around sick people. I have no hesitations in telling sick people to stay away from me or I just walk away from them. Whatever that person has can be TWICE as bad on me, and possibly put me in the hospital or home for several days.

Have you thought about getting your IVIG every three weeks? That helps cut down on the number of infections a great deal.

Hi my name is Debby, and this is wonderful that I found this site. I am not realy adept at computers, and I am amazed at myself that I even got myself signed up. But I did, so maybe it is a sign from above. I was diagnosed in 1995 - so about 13 years. I was born and raised in pasadena, ca. And was never sick until I moved to Omaha, Ne. And god I was sick all the time, I was always on antibiotics for about 5 years. I had chronic sinus infections, ear infections, pneumonia, bronchitis. Finally went to an allergist immunoligist and was diagnosed. Started ivig, and within 6 months wasn't getting sick. Moved to colorado, had no health insurance, got so sick, ended up in hospital with Sepsis, almost died. Since then I have been living back in california. I don't get sick. But I hate it here, and am always depressed, in fact I don't know what is worse, I rather be in colorado, because that is where my kids live and I miss them terribly. But I cannot afford to live there. Anyways I don't know why I going on about that. I guess I am intrigued to find out why, if you are getting the ivig, you are still getting sick? I guess I don't get it. Especially if they are still giving you antibiotics on top of it? PLease feel free to talk to me, as maybe I can help you out in some small way. I totally know what its like to have chronic sinus infections, it's like not the end of the world, but it does deplete your energy especially if you are on antibiotics all the time. I take mega vitamins, especially vitamin C

Hi, I was diagnosed with CVID about 14 years ago. It took about 4 years to get things to level off. I see an oncologist for treatment. When patience recieve chemo it destoys there immune system so it is kinda similar. Do you have allergies?? Acid reflux?? Sinus drainage down the throat increase acid, in turn increased acid causes sinus irritation. I opted to aviod antibiotics unless I ahve an active infection. This way they are more effevtive when I use them. If you have any questions please let me know. I have studied CVID and the related treaments, drugs, side effects, secondary problems, etc in depth for several years.I would be happy to share What I learned.

Hi doses of Probiotics.

I refuse to use antibiotics unless I have an infection that will not go away. Antibiotics kill both the good and bad bugs. Probiotics make the good bugs thrive.

My doc told me to take probiotics too.

I also make yogurt drinks from PLAIN yogurt and add some fruit or baking seaonings ie as pumpkin pie flavor, vanilla, cinnimon and so on.