My name is Jamie. I'm 28, and I was diagnosed at 13. I was on the IgG treatment for 10 years and stopped it when I got pregnant with my first child. In hindsight, it was a really BAD idea! After I had my second child in 2010, my life turned upside down. I've had non stop issues since he was born. I had a hysterectomy in Jan 2011 after bleeding issues, since then I've had mrsa, multiple sinus infections (one took 4 rounds of antibiotics and then required sinus surgery to try and alieviate the problem and remove the infection!), multiple skin infections,a tooth infection and now pneumonia. I have been playing a nice game of "whack a mole" with infections. I had to go through the whole diagnosis process all over again. I got my first infusion in January 2012, My work then switched companies and now I no longer can afford IgG, they will only cover SubQ if I'm home bound. We make too much for assistance, and we can't even afford the payment arrangement the dr's office is offering. I don't really know where to go from here. I'm an emotional wreck as I'm about to have to go back to the dr for a 2nd round of antibiotics for the pneumonia.. I've never felt so alone and just need friends and support from those who know what I'm going through with the stress and illness of this condition. My family, friends and husband try to be supportive, but they don't really know hat I'm going through or they just try to tell me how to "fix" the issue.
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