i was dignosed with cvid in february last year i’m 17, i feel like no body understands what i go through i’m always sick, i get an infusion every 3 weeks im just glad other people understands what it’s like
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Hi, I am very happy to have people to talk to and help with support as i live in KW Ontario and we have no support groups here at all. In the one and a half years I started and found out I have Primary Immune Deficiency (at age 53), low igg,iga,igm, I have never met anyone with this. Since I have started Hizentra home infusions 3 months ago every week I infuse 40 in three sites. I have a lot of...
Hello,I have low IGg and IGA and I went to an immunologist that really does not have enough experience in CVID. I had years of back to back sinusitis and ear infections. I am doing better with infection now but I am encountering several autoimmune conditions. I have Raynauds, Rhematoid Arthritis, Celiac Disease, and possibly Myasthenia Gravis (still undiagnosed). I need to find a good...