Does anyone know about a charity for CVID, or would be interested in starting one?
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I have had 7 monthly IVIG treatments. My IgG was up to 580 from a low of 243. I was having a lot of good days with fatigue being manageable. I have hit a brick wall: a day or two of sleeping 16 hours then more frequent fatigue and recently overwhelming exhaustion after mowing or cleaning the grill. I'm looking for anyone who has experienced this. I don't know if this is disease or depression or...
I have been doing monthly subq hyquia since late 2015. At that time I was diagnosed with CVIG by my current doctor I am seeing, my igg levels were 440, my recent test was 660 igg. I am so frustrated with having to do the monthly subq's. The first immunoglist that I went to said that 440 was considered boarder line CVID. So I wonder if I should keep doing the monthly subq, or see...
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