Ok so, I am 26 with a Non-repaired Cleft Palate and Pierre Robin Syndrome. I have been having ALOT of pain in My left Jaw. I also have an ear infection in the left ear. Well I am at the point where now I am in tears when I try to eat simple things like, pancakes and Hot Pockets. I am eating Mashed Pot., Mac N Cheese, Soups, and Pausta. Well things are running thin on those now cause in a house of 4 other Adults who DO NOT have any problem eating there is mostly Steaks, Pork Chops, etc. that I can not eat. And NO one in the house can EVEN begin to know how bad the pain is cause they act like it is No bog deal. I mean every one of them is telling me not to fix it. Even my Aunts who took part of my growing up are telling me not to. They keep saying that I will be in more pain than I am now and that it is NOT worth it. But how do they know? They do not know what it is like to cry though your meals. My boy friend keeps saying you are not going to have the surgery cause you are not going to have a feeding tube put in. Hello, I had a NG tube for a LONG time when I was growing up. I feel so alone and want to just run far away.
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