my 6mo sonhas bilateral cleft lip/palate the lip has been repaired, but he's been sick, off and on sence his surgery, upper respitory infection he's got a nebulyzer and get albuterol to help him breath.. and another ear infection, he's not wanting to eat no milk he'll eat a lil solids bananas and rice cereal but not much mostly he just wants pedialyte.. i think he's loosing weight, i am so nervous, he's seen his reg doctor twice and a trip to the ER once..they keep saying to just wait it out as long as hes getting fluids.. but he looks paler now, and all he wants to do is sleep.. i have to travel across the state to get to his craniofacial team, i was wondering if they would do anything different then the regular pedi? my mom keeps saying the illness has nothing to do with cleft..she could be right.. i would just find it really comforting to hear from others who've delt with this.. he's my second child but my daughter was hardly ever ill compaired to this lil guy
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