Cirrhosis Support Group

Cirrhosis is a consequence of chronic liver disease, most commonly caused by alcoholism and hepatitis C. Ascites is the most common complication of cirrhosis and is associated with a poor quality of life, increased risk of infections, and a poor long term outcome. Liver damage from cirrhosis cannot be reversed, but treatment can stop or delay further progression and reduce complications.

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social security disability

Have any of you gone on disability because of the cirrhosis?

Replies

lostonrye
lostonrye

In the UK Cirrhosis by itself is not enough to claim disability benefits
The diagnosis has such a range of effects from non to bedridden.
So the Cirrhosis can be the cause of the symptoms But the incapacity is assessed on the symptoms, with cirrhosis secondary.
If you can prove that you have less than 6 months to live you can generally get all your pension paid in a lump sum and also disability allowance. But it is difficult to get a doctor to say this.
So any claim should be made citing the symptoms with the Cirrhosis secondary.
Mental health as a result of cirrhosis can be a factor
ChelseyAnn
ChelseyAnn

I got approved for disability last March though I began the application process almost a year prior. It was grueling with tons of paperwork and I did get denied the first time but then got approved when I submitted my paperwork for reconsideration. from what I understand I have will have a medical review after three years (now two more years) to determine if I am still eligible to receive benefits. Oh, and luckily I was able to start and complete my claim without the use of an attorney.
deleted_user
deleted_user

I applied Sept 27 of last year and was approved 2 1/2 months later with no problem. I think some of it depends on your doctors. I had a 10 day stay at a hospital with 3 days in ICU and that helped alot. I have heard nothing about a review. I think it depends on how far your condition has progressed.
deleted_user
deleted_user

ChelseyAnn is right. The paperwork is long, tedious and time consuming. The approval process can take 69 - 90, IF you are approved. My husband had a transplant, so his application was approved the first time, luckily. IF you are approved, you may still work and make up to $1,000.00 per month. Some companies will work with the employee to allow them to work and keep their insurance benefits. Unfortunately, my husband's was not one of them. We were able to COBRA for 12 months and are now in the State High Risk Insurance Pool. Keeping your insurance is EXTREMELY important.
deleted_user
deleted_user

I have been on short term disability from my work since Aug 4, 2010. My short term ends on Feb 16th so my employer has a policy that once you end short term disabliity you need to go on long term disability at which time you are terminated from the company so Feb 17th my long term starts and they have approved me but stated that I must apply for SSD. My insurance company has approved my transplant ..... my son is giving me part of his liver. The insurance transplant coordinator told me to contact this company call allsup to assist with the application. I did and was told that they would take 25% of the lump sum backpay. Not sure about all of this but the allsup group states that I have a great claim. I to have hep C that has turned into cirrhosis, massive gastric veracies that cannot be banded and a bad case of hepatic encephalopathy. I am hoping that Blake and Chelsey might have the answer I need. So the symptoms got me approved for short term and now long term, lets see what gets me approved for SSD, especially after transplant.
JJ
ChelseyAnn
ChelseyAnn

Hi jjquinn :)
The thing with disability is they are tricky. Some people that really should get approved don't. My case worker had called me after I got denied and then put in for my reconsideration and told me he didn't know why I got denied in the first place and then I was approved shortly after. Alot does depend on your symptoms and diagnosis and also on what your doctor says and how you answer the questions on the disability form. The questions are endless and they seem like they repeat themselves but if you think about it you have the opportunity to make a very good case for yourself. I was told by my transplant hospital early on that immediately following transplant you are automatically approved for disability for a certain amount of time. I don't know if this helps but I do wish you the very best of luck and also, I'm happy to hear you are getting a transplant :)
Best wishes and prayers to you,
CA
deleted_user
deleted_user

JJ, did you say you would lose your job when you go on long term diss. I am thinking about short term diss at my work. I am having problems with fatigue and HE. My job has 12hr shifts and it is imposible for me. I don't know how I will live on dissability, but if I must....
deleted_user
deleted_user

Yes, my husband was recently approved. We applied on line, without an attorney, and it took about 3 months for the approval. I didn't find the application process as bad as I had heard it would be. The approval probably depends on the documentation the doctors have to support the claim. My husband, unfortunately, had several of the evaluation considerations as listed on the SS website. He too will be re-evaluated in 3 years. Good luck, it isn't the same as being able to work full time but it is a financial blessing!
ChelseyAnn
ChelseyAnn

I didn't use a lawyer either and even though it took me a year to get approved and no, it's not like the feeling you get from working full time you're right, it is a financial blessing so I'm grateful :) I'll have my review in 3 years too (well, less now since I've been on it almost a year) and I may consider going back to work part time too if I can find something that can deal with my being so tired all the time.
Take care everyone :)
CA
deleted_user
deleted_user

If you're in the USA, you may want to read the SS disability page for liver disease at:
http://www.ssa.gov/disability/professionals/bluebook/5.00-Digestive-Adult.htm

(SSDI and SSI are two completely different programs, but both use those same medical requirements.)
deleted_user
deleted_user

ChelseyAnn--- your transplant center is right, a person can be considered disabled for 1 year following transplant. (After 1 year, they usually send out a CDR form for you to complete.) (CDR = continuing disability review)
deleted_user
deleted_user

I was incredibly ill with cirrhosis and diabetes, essentially not expected to live.

A state social worker based in the hospital took pity on me and completely handled the paper work. I wasn't mentally or physically able to do so. They normally just point you in the right direction, give you the forms and tell what help is available. He did everything and I am forever grateful.

I remember receiving this big stack of questions in the mail, all to do with could I take care of myself, cook, drive, balance a checkbook, etc. I was so sick I called the number on the packet to ask for an extension.

Turns out I was already at the regional level, he said don't worry about it, your medical records are more than enough.

In the end, it took about 30 days to be approved.
ChelseyAnn
ChelseyAnn

My biggest regret is that I listened to the rep from disability when I was being discharged from the hospital in 2008 right after my diagnosis. She told me, quite rudely, that there was no point in my applying because I'd never get approved. The reason I decided to apply when I did in 2009 is because my social worker at Walter Reed suggested it and I am very thankful to him for that because I don't think I would have done it on my own.
Take care and God bless :)
deleted_user
deleted_user

I WAS TURNED DOWN TWICE IN TENNESSEE. WHEN I HIRED A LAWYER I GOT APPROVED. HOWEVER, MY DISABILITY WAS AWARDED FOR A COMBINATION OF THINGS, NOT JUST THE CIRRHOSIS. THE SOC SEC BLUEBOOK (available on line) is very specific about it's liver criteria for cirrhosis. GOOD LUCK TO YOU
deleted_user
deleted_user

I applied in person without an attorney or disability rep. in April 2010, went to all the Dr. appts they set up for me, got denied 90 days later. I then went to a disabilty expert co. and they appealed and I was turned down again 2wks ago. My Dr. my G.P. used to "work" for disability in that, he would be one of the Dr's taking on the pt. applying for disability.. so he knows their criteria etc. he could not believe they turned me down again! So with my depression worsening and my meds not helping much, I went to a psychotherapist for some counseling and have an appt with a psychiatrist in April (if I'm still sane by then) on the advice of my G.P. cause he is afraid to prescribe something different for depression because of the cirrhosis - I'm stage 4 with minor symptoms. We will now go to a hearing with a judge- they call them AGL's but I was told by the rep. that it could take a year or so unless my condition gets worse. I know there is a "bluebook" that disability goes by but I REALLY think it depends on what state you live in and what you're Dr. says on paper. My sis-in-law lives in TN. and she knows someone on SSD cause they can't read.. C'mon!! Thats just wrong! AND she says that person has never had a job!!! So it's a try, try again situation if you have too. But give it a shot- have to get your money somehow if you can't work anymore. Peace, Karen