I have been dealing with my husbands ammonia levels being so high, and his encephalopathy. Last weekend he went through the er with an ammonia level of 167. And I thought that was bad. He was in the hospital for three days. Today, both my son and I tried to wake him, but couldn't get him up. We called 911 and they came and took him to the er again. His ammonia level this time was 184, and he was borderline comatose. And the clinic wants to run more tests before they put him on the list. Go figure. I guess what I am not saying is this. Keep taking the lactalose (enulose). That is the one thing that I was told could keep those ammonia levels in check. No matter how bad it tastes, no matter how bad the side effects are, don't stop, or even miss a dosage. Not taking it has horrible consequences. I am going on right now one hour at a time, watching this man I have spent my life with, lying there in a bed with no recognition of me, straining against the restraints that keep him from pulling the stomach tube out of his nose, and having his unshaven cheeks sunken into his face. It tears my heart out. I just wish that back in the day when I was begging him not to drink or whatever, he had listened to me. If only I had tried harder or longer or more forcefully, this wouldn't be happening. But that was then and this is now. I know that God is in control, but I don't feel comfortable on this roller coaster, especially the downhill slide. I keep praying to God, He is here.
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