Cirrhosis Support Group

Cirrhosis is a consequence of chronic liver disease, most commonly caused by alcoholism and hepatitis C. Ascites is the most common complication of cirrhosis and is associated with a poor quality of life, increased risk of infections, and a poor long term outcome. Liver damage from cirrhosis cannot be reversed, but treatment can stop or delay further progression and reduce complications.

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Does Cirrhosis hurt

I have had two doctors say that cirrhosis does not hurt.I think I know when I am in pain.Anyone else had this happen.

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deleted_user
deleted_user

I think your doctors need head shrinks!!!! Let them live with the pain and increase their knowledge AND COMPASSION!! Some doctors can say the MOST ABSOLUTE STUPID THINGS!!!ARRUGGGGHHH!! The pains you are suffering from are directly from your body's reactions from cirrhosis damage. I don't know WHY they would tell you such a thing!! We are searching for another dr. for hubby now because of his dr.'s poor patient relationship. ie. no answers to important questions,rude behavior,don't give a darn attitude,temper tantrums ect,ect.Lord,guide us to a good doctor!!!God bless the good ones and God, deal with the bad ones!! Gene,you know your body and it's pain. Don't let them jerk you around to think nothing hurts. Millions suffer pain with this illness,and they are not all wrong. But apparently those 2 doctors are. God bless you my friend,my prayers are with you and your Mrs.
deleted_user
deleted_user

Cirrhosis does hurt, I am watching my husband get addicted to the only pain medication they can supply him that does process through the liver and he HATES to take any medicine. He was a very strong man ( and still is ) but I watch him cry somedays from the pain he is in. You know your body and YOU HAVE TO BE YOUR OWN ADVOCATE WITH THESE DR'S. If you have a family member who can go with you to the DR who can "raise some cain" on your behalf you might have more success with training your DR. That is what we had to do and it worked. Good luck and my prayers
deleted_user
deleted_user

As someone who had liver disease for over 25 years prior to transplant I can say that cirrhosis can cause many things. I used to suffer from terrible body aches think flu and multiply by 3. the fluid retention eventially can get so bad it becomes extremely uncomfortable. Theloss of muscle and strength makes one very susceptible to hurting your back and pulling muscles. I just spent 10 weeks in the hospital after transplant and believe me Doctors have no idea what they put us through and how difficult, painful and miserable some thingws are and the mor specilized they are the more likely they are to be singularly focused on that specialty and not see the whole person.
deleted_user
deleted_user

Maybe the doctors wording was careless. The liver doesn't feel so much pain but when you have cirrhosis of the liver it affects the rest of you because everything goes through the liver to be metabalized. I know I feel pain in most of my body due to cirrhosis. Some pains worse than others and some just starting. What ever the case both doctors where thougthless or not educated enough to be dealing with cirrhosis. Sorry you had to hear two doctors say that. All the posts here are good but seeking hits it on the doctors. Are you seeing a GI?
deleted_user
deleted_user

The actual liver has no nerve endings and so cannot feel pain the pain we all suffer is from the surrrounding tissues when the liver swells. It can be the worst experience a man or woman can know. So when they give meds for pain be grateful. I am forunate to have a good doc.
deleted_user
deleted_user

I don,t think its the cirrohsis that actually hurts its what goes with it I can,t say I am in pain from any one particular thing you just have to treat each symptom as it arises
deleted_user
deleted_user

I,m sorry I hope you don,t think I was being flip with my answer about pain right now yes everything hurts, all the biopsies with no pain medication, bandings, parencetis,so many tubes down my throat and the other end i can,t remember any more, 4 surgeries 2 to go, dental with no anesthetic maybe I have just become numb, and its not just your drs, they don, want to listen they don,t have time and sometimes i just don,t think care as long as they meet protocol. I love the way they give you little pics of 1 to 10 to rate your pain if i had enough strengh i think i would just strangle them but then again they have you restrained and something down your throat. Oh well my venting for the day hang in there kid.
deleted_user
deleted_user

thank you for all of your in put.
deleted_user
deleted_user

Yes it does hurt! I have a burning, stinging sensation and sometimes a cramping feeling around my liver area.. no the actual liver does not hurt, but the membrane surrounding it does hurt and it does feel like pain is in the actual liver.
deleted_user
deleted_user

My acites can hurt like hell from the fluid retention pushing against the insides. I can't say the endoscopy hurts when I have had it banded they knock you out and give you a amnesia drug and you don't remember anything. My paracentis only hurts when they inject the paind killer on the injection site and what little if they have to move the tube around isn't bad. I feel so relieved that bit of pain is nothing to what the acites does as you get closer to the drainage time. With liver disease one tends to get gal stones so that area where the gall bladder is by the liver gets bad. Then I have muscle wasting due to my liver not processing protien and my legs get week and achy. I could add some more but liver damage does cause lots of pain depending on the area or organ it effects.
deleted_user
deleted_user

It still amazes me at cold hearted so many people in medicine can be. I am not the one with the liver problem but I am in this group to help my sister who was diagnosed a couple of months ago. She would get herself to work even if it meant she had to crawl in the door. And I mean that. SHe is no whimp and she has had horrible pain. From what I have learned during her ordeal is that the pancreas is usually involved. Please feel free to correct me as I am still learning what I can here. Before she was actually diagnosed with cirrhosis, her acute problems would start with pancreatitis and I have heard from many people that do not drink at all that the pancreatitis is horribly painful. So while the liver itself may not have nerves inside it, that does not mean that there is no pain with this illness. I say SHAME ON THE DR involved. What do you do? Take a pill in order to relieve the pain or go take another drink?? So many people end up being alcoholics to begin with because they are suffering from some phyisical pain and are seeking some kind of relief. I am not giving anyone an reason here and not saying its all cases but do feel strongly that a good many end up with problems because its cheaper than medical care.

Hope I did not offend anyone as that was not my intention here. I am just very concerned and a little wound up about what I can do to help my sister. So if I did offend anyone, please accept my apology.
deleted_user
deleted_user

I also have had lots of pain with this disease. My shoulders and upper arms hurt so bad it is excruiating, I cannot reach behind my back without pain that lasts after I try. My lower backs and upper thighs hurt and in the last month now when I wake in the morning my hands will not close I have to work on them. Even if I lay down for a few minutes they ache and are stiff. I did see a regular doctor and he said my vitamin d was low and did prescribe a very large dosage. I took for two weeks and then once a week for the next 4 weeks. I still have the pain and the stiffness in my hands are worse. I did something the other day I did not think I would ever do. I have not drank since April 3rd of this year, so for eight months. All my levels have improved to almost normal. My doctor is happy but he has also said my cirrhosis is not causing my pain. I drank last week and yes it helped my pain. Although Im one of these people with Murphys law. I could not drink at home because my kids would have immediately poured it out. So I parked my car and drank. Naturally I got caught. Now im facing a DUI even though I was not driving because my keys were in the ignition. I knew this could kill me but I did it anyway. Now I don't know what will happen to me. I have not officially been put on the transpolant list because my meld score was so low. I have attended AA weekly and not drank. But this one slip up, totally my fault has probably made it where I will never be allowed a transplant and who knows may be in jail, not to mention fines. I will probably also lose my disability that was just approved two months ago. Im really screwed. Oh well I guess I am just venting. Thanks for listening. But the pain is there it is real and while I don't think the pain is actually in my liver, I do think it is caused by effects from the illness. I was also told I could not take tylenol or ibuphrophen, aspirin and was not offered anything else. I believe my doctor is a good doctor but I also think many don't think the pain is in the liver so the other pain must be something else. I do have a specialist I see and he was the one that referred me to the regular general doctor whose only comment besides the Vitamin D was did you learn your lesson...I guess not.
deleted_user
deleted_user

I am praying that your pain diminishes and that your doctors wake up to reality!