
Chronic Pain Support Group
Physicians and professionalsdefine pain as chronic if it lasts longer than three to six months and is persistent. It's distinct from acute pain that is a direct result of injury or trauma. This support group is dedicated to those suffering from chronic pain. Discuss treatments that have worked for you, find advice for your specific experience, and find support. You're not...

deleted_user
my 26 yr. old has been in pain for 4 yrs. now...she has been on many meds, surgeries, drs. specialists...she was a active college student. dancing, dating, working, and just being a normal person...she is in constant pain...there is nothing i can do to help her...she only goes out if it is to a appt.....she lays most of the day...watching tv, reading, music, talking to friends on net...i have bought her some things to do: painting, many, many different crafts to do, books to read, movies to watch..whatever i can think for her to do...does anyone have any ideas...why do people need to be in pain..when it rules lives...you can't think for the pain...it is just in every aspect of your life.....
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I can tell you that what helps me the most is just talking to her, having her tell me stuff about my childhood that I didn't know. She has so many stories that I had never heard before (I'm 48).
It sounds like you've gotten a lot of the things that I do when the pain lessens, so I don't have any other ideas other than talking to her.
Good luck, and best wishes.
that is a true mother
i think you are on the right track trying to occupy her time with the crafts and stuff
life is what it is and you are doing well if you are worried, contact someone in the health field that can give you some goals at getting your daughter to the point that she can go out with friends and to the mall
it may be a long road but i believe with goals there is hope and sometimes that is all you need to g up in the morning
good luck and you will be in my thoughts
Manny
I am sorry for you because it is hard to see a child in pain. I've had short experiences with that. One boy (I have 1 girl and 3 boys ages 6 to 18) had a rare disease - Kawasaki - which lasted 2 weeks and required hospitalization when he was 4. I slept in his room and was with him the entire time. At some point, the meds he got caused a severe headache. My little boy was in so much pain and I could not help him. I asked the nurses for meds, they gave him tylanor.. He had 105 and was in horrible pain. I sat with him and rocked him and cried with him. What could I do? But fortunately, he recovered and there were no post-complications (this is a rare condition with potentially serious after-effects with heart problems). So he's a happy go lucky amazing 6 yr old - he is my most effective remedy.
When I am in the worse shape, I call him and ask him to get into bed and read to me. He reads very well. He loves reading to me and thinks it's the greatest meanwhile I just look at him and my heart expands with love and the pain is better.
Does your daughter have a network or people other than you that make her feel like my boy makes me feel? He is the most positive human I ever met. No matter how irritable I get (with pain or bipolar disorder issues) he seems to totally not mind me.
I am rumbling I know but your plight touched me deeply. I am always afraid for my kids. If they have a cold, I listen to them at night to make sure they are OK. I touched their foreheads to see if their fever is under control. Having to watch a child in pain all the time is so hard. You should join a support group (or start one) for people who care for people with pain.
could pay) to come over and
I am so saddened to read your post, nothing can break a mothers heart like watching her child suffer. Does she have no pain care? If she were on the proper meds, titrated to where it needs to be, quite possibly high dose opioids, her quality of life would return. Maybe not 100% but substantially. It is very difficult to get proper care for chronic pain in this country.
Undertreated chronic pain is our nation's number one public health crisis. Due to the fact that federal law enforcement now regulates medicine in this country. I belong to the Pain Relief Network, we are working tirelessly to end this epidemic of suffering, with our civl rights movement. Chronic pain is a disease and needs to be treated aggressively now, it is often times lethal.
If your daughter would like to visit our forum, she would be most welcome.
Tami PRN
http://www.painreliefnetwork.org/prn/category/mainpage
Personally. I feel that all people who have chronic pain have depression. I think it's a matter of time. Sooner or later it will start to eat you up if you let it. I am happy your loved one is not depressed and hopefully she doesn't get in a rut in the future. Stay as active as she can is the best bet and try to pace and do what she can when she can and Huggggggs