I got injured 2 1/2 years ago and it was at a hospital. I had an SI injection done into my right hip. I was asked to stand and nobody assisted me. The radiology tech in the room was the one that instructed me to stand in the recovery room. My wife was sitting there watching the whole thing. I fell directly onto my cock sick and sacrum because my right leg could not support me. I was knocked unconscious. I suffered a severe TBI. I lost consciousness for several seconds and then there's a period of several hours that I don't recall and about two are out of three hours were very hazy. I feel just as much pain as I did then as I do now. I've had CSF leaks and will have additional surgery at Cedars-Sinai. I went to Every regional hospital in my area and finally ended up at Johns Hopkins. I am being seen by a neural ophthalmologist and I had spinal cord surgery to repair tears in my Dura using fiber and glue. I've also how did intercranial pressure or ICP procedure done to measure the CSF pressure. I am in the range from the neurologist or neurosurgeon on that did the procedure in a range that is OK. The neuro-ophthalmologist does not agree. The individual that did the fiber glue CSF leak procedure I'm trying to get a hold of before my procedure at Cedar Sinai because he was the one that told me during the procedure he thought there were several more leaks. I've been at Johns Hopkins for about 18 months. I am amazed that I do not have a neurologist. They also do not offer a TBI treatment facility or rehabilitation center that seems to be something that is absolutely necessary once you've had a traumatic brain injury. The pain that I go to daily makes me question whether or not I have the strength to be able to handle this. I can only overcome the pain through medication. I am just beginning to go into a swimming pool and eventually I will be using that to build some strength back and to exercise. I don't want to do anything that would be heavy impact on my body. I can still feel where they did the intracranial pressure monitor procedure. I have tried calling online Warm Line's and I have had many of the same results that other people mention which was fairly negative when dealing with anybody who is not trained in pain management or in the injury that specific to what I have. I suffer also from overstimulation, photophobia, and convergence disorder as well as I'm getting ready for spinal cord surgery and will have a laminectomy and they will also repair the micro tears to the Durham and do a Myleogram. What I hope to gain from joining this group is some skills and also how other people that when they have dealt with doctors are trying to live with chronic pain. I would like to know how other people actually deal with that and I want to hear how angry some people get when it's so frustrating trying to get proper help and care or somebody who understands. I would like to know how to deal with those things better. I certainly would like better pain management from my primary care physician and I have been to pain management centers and those of all been just OK experiences. I think that opiates and Marinol as well as medical marijuana are important ways and dealing with chronic pain. I live in the state of Maryland and I have an affirmative letter from my physician to use marijuana to treat pain. I have several doctors that I've written those types of letters. I currently just take Maren all which is prescribed in all 50 states. I do not smoke it. I had spinal cord surgery and if I was coughing I don't think that would be too bright. At least they do have alternatives to to marijuana but there's nothing like the real thing. I don't drink alcohol and I don't abuse my medication. I have had a lot of difficulty dealing with other people because of the pain and the pain has prohibited me from doing almost 99% of my daily activities. I would like to get a benefit from the surgery I am about to have at Cedars-Sinai by Dr. Wouter Schievink M.D. and I am not looking forward to the recovery but I am definitely looking forward to seeing some benefit. I do take it very seriously and I think Anytime you have a procedure it better be for something that is necessary and that's very important because you're in pain and sometimes people make bad decisions. I have thought this out and because the pain is so severe I am willing to do it.
Anybody ever had success with getting sex off the brain. 4 months abstinent and I want it to keep going. I know reverting back will not make me feel good. For the most part I do ok. But occassionaly, like today, the urges are quite strong and take a lot of effort and focus. Also hard to find things to keep you preoccupied during lockdown, glad it is ending soon. I'm impressed I have stayed...