Hello, I am 38 and I have been dealing with pelvic pain since Oct. of last year. I had my periods every 2 weeks for 2+ years and last year the pain started with them. I had a laparoscopy and no endo was found. I was put on depo provera and the pain got worse and my periods wouldnt stop so I had to have a total hysterectomy Feb 09(endo& andeo). I was bed ridden for 3 months prior and this was the only option. I still continued to have pelvic pain and tail bone pain post op. My Dr said he couldnt help me any further since I had nothing left. I guess I kept going from gyn's to gastro Dr's thinking they could help me but nothing happened. I have went out of state to major medical hospitals and no one can tell me why I'm in pain all the time. It never stops. The pain clinics wont touch me. I tried going to one of the leading clinics out of state yesterday and they said no they wont give me a shot to help the pain. I scheduled an appointment with a regular Dr and went yesterday to see him. I had another family Dr but he wasnt really listening to me and only gave me 5 minutes of his time. This doctor suggested I go see a neurologist and he thinks I have nerve damage in my pelvic area and tail bone area. It sounds right and I have never been down this avenue so I am seeing one this Tuesday. How can they tell where your nerve damage is? What do they do? The pain is so bad I cant touch the right side of my stomach. I can wear jeans cause it hurts to bad. I cant walk, stand, lay down, sleep, or any activities just makes it worse. Is there anyone like me? I have been reffered to the Mayo clinic and I'm waiting on word if they will see me. I will find out next week from what they are telling me. I have doctors I have seen that wrote summary letters for me but if I can figure this out with out having to go to Mayo I would rather stay around here. I just want to know how your experience is with a neurologist? They said if I need to see a neurosurgeon they will reffer me at that point. any help or advice would be great. Thank you!
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