Hey everyone. I’m 18 and have been diagnosed with Ankylosing Spondylitis since I was 13. After a recent, horrible 2.5 month flare I’m on Remicade and it has helped a lot.
My pain clinic doctor recommended a Chronic Pain Management Group to go to once a month. I’ve been to the first meeting, there’s some interesting info but I feel so alone in the class.
I’m the only person with AS, and the youngest person in the class. The second youngest person was 30. It was what I expected when I saw the people in the group, older people lots of white hair. I’m not mad or upset that they’re there, I’m happy they’re getting information and support like me. I just knew it would be no one my age and no one with AS. I can barely find anything online about people my age with AS.
It would mean a lot if anyone here with AS, of any age to reply, maybe share your story if you’re comfortable and tell me if you can relate in anyway. Thank you ♥️
Lately I've been feeling so alone more and more and I'm trying to put myself out there but it's hard when you think and feel is that everyone is going to leave because that is all ive ever known on top of that I deal with social anxiety. I'm 28 and have no one, my mom died near the end of 2017 with losing my mom I became so broken and depressed my so called best friend I had since middle school...
Honestly I feel like shit .i had a good day at work and despite that I still feel my head spiraling to really bad thoughts/ ideas .i know I should be able to handle waiting to see my therapist on the 4th but it just seems way to far away .thats so many work days and so many days to choose if I take my medicine or not :( I’m just scared sorry for the rant just feel terrible plus I keep wripping...