Hey everyone. I’m 18 and have been diagnosed with Ankylosing Spondylitis since I was 13. After a recent, horrible 2.5 month flare I’m on Remicade and it has helped a lot.
My pain clinic doctor recommended a Chronic Pain Management Group to go to once a month. I’ve been to the first meeting, there’s some interesting info but I feel so alone in the class.
I’m the only person with AS, and the youngest person in the class. The second youngest person was 30. It was what I expected when I saw the people in the group, older people lots of white hair. I’m not mad or upset that they’re there, I’m happy they’re getting information and support like me. I just knew it would be no one my age and no one with AS. I can barely find anything online about people my age with AS.
It would mean a lot if anyone here with AS, of any age to reply, maybe share your story if you’re comfortable and tell me if you can relate in anyway. Thank you ♥️
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