Hey everyone. I’m 18 and have been diagnosed with Ankylosing Spondylitis since I was 13. After a recent, horrible 2.5 month flare I’m on Remicade and it has helped a lot.
My pain clinic doctor recommended a Chronic Pain Management Group to go to once a month. I’ve been to the first meeting, there’s some interesting info but I feel so alone in the class.
I’m the only person with AS, and the youngest person in the class. The second youngest person was 30. It was what I expected when I saw the people in the group, older people lots of white hair. I’m not mad or upset that they’re there, I’m happy they’re getting information and support like me. I just knew it would be no one my age and no one with AS. I can barely find anything online about people my age with AS.
It would mean a lot if anyone here with AS, of any age to reply, maybe share your story if you’re comfortable and tell me if you can relate in anyway. Thank you ♥️
So I have done a very good job at pretending that I'm fine for years. However, now I can't pretend anymore. I know I need help. I've tried therapy once before but I don't think I was ready for it and I don't think that particular therapist was right for me. I just signed up for a free trial with Better Help and I just poured my heart and story out to the counselor that I was matched with but...
Hydroxyzine..., does it help?Medication shy now and this is why...,Recently there has been too many challenges with getting treatment for my PTSD. The psychiatric side is fixated on BPD (though I didn’t have it prior to seeing her) and is using my medication responsiveness as reason it’s BPD and why PTSD can’t be treated right now.I have a very rare case of gastroparesis that has a direct...