MPS is one of my health problems. What would you like to know?

Ouch

I have body-wide myofascial trigger points from MPS. There's a couple of excellent books you might like to look for in your library or book store-- "Fibromyalgia & Chronic Myofascial Pain, A Survival Manual," by Devin Starlanyl and Mary Ellen Copeland, and "The Trigger Point Therapy Workbook," by Clair Davies, N.C.T.M.B.
Please feel free to contact me, I've lived w/MPS for about 20 years. I don't claim to know everything about it, no way! :o) But I do follow research & try to learn as much as possible.

I have chronic myofascial pain syndrome. Everywhere in my body. Contact me if you like!

I have it. It is the cause of all of my headaches and other bodily aches and pains. I'm here to chat with if you need to!

I started the road to pain in my face, right side of my face. My jaw locked and I couldn't get it opened over 28% for quite some time. Later I was diagnosed with Fibromyalgia. With fibro the pain and spasms tend to wander unfortunately my body is now equal opportunity.
When I was in spasm, the thing that helped me most was freezing water in a smalll styrofoam cup, tearing the bottom out of it and applying the ice for 15 minutes and then heat for 15 minutes (for this I used a tube sock with white rice in it for moist heat) My Doc told me that it confuses the muscles out of spasm. Worked well. I also got a freezing spray treatment that did better than anything.
Contact me if you wish!
Hope this helped!

I have myofascial pain in my back betwwen my shoulders, I go to a massage therapist who tries to work out the tightness.

HI. I'd try finding a myofascial specialist in your area to help. Massage therapists also do trigger point massage.

I would like to know how they diagnose this. I was diagnosed with fibro but then that was wrong because it was a chiari malformation and symp had gone away after surgery. I have back pain (I am a nurse and I think it comes with the job) so now new pain dr says it's MPS and not fibro. I don't think it is either and I wonder how he can just say it is just after touching my back and nothing else. I know with fibro you have to have so many of the trigger points.

Wow, after 8 years of struggling with this on my own, it's amazing to me that there are other people out there who have MPS. I've thought for so long that I was the only one who faced these challenges. It means so much to me to find out other people know what it's like

I am not sure of the difference between MFS and Fm/CFS...I have mindbending fatigue...I have bodywide muscle pain...and I simply cannot be touched in ALOT of areas on my body...mostly neck/shoulder areas...lower back , hip and thigh areas...i light touch feels literally like a knuckle punch...I have been diagnosed with FM/CFS...but I never hear of anyone complaining about the innability to be touched...

Good morning, everyone. Someone wanted to know the diff. between Fibro & MPS (or CMP, as some call it).
I strongly recommend the book "Fibromyalgia and Chronic Myofascial Pain, A Survival Manual," 2nd edition, by Devin Starlanyl & Mary Ellen Copeland. I recommend the 2nd edition b/c it has a lot more info on CMP.
(I have no financial interest in the book., etc.)
There is a HUGE difference Btween the tender points of FM and the trigger points of MPS/CMP. My hands will give out B4 I can type the whole explanation, but one good example, is on pg. 33. It says..."If you have only FMS, you are not going to find hard lumps and bumps and ropy bands in your muscles. Those are part of the TrPs that characterize CMP."
From personal experience usually (but not always!), if you apply pressure to a TrP the pain will travel to a different location on your body. The pain can be constant or sporadic, mediocre to utterly excruciating. The muscles can be in a permanently shortened, constricted state.
With FM, exercise can be helpful, w/CMP/MPS it can cause a lot of damage if you work a TrP laden muscle.

I 4got to add that someone posted Devin Starlanyl's website; if you go to Google & type in her name the site will pop up.
Gentle hugs, & may you find relief soon.

my massage therapist has stated that he "Feels' alot of bumps under my skin...I often get sick from the massage therapy...but it has actually helped me so very much that i simple endure the pain...have become quite good at it over the years...

I have alot of lumps I can myself actually FEEL on my legs...who do I see to find out about that diagnosis ?/.and what are the treatment options ??

I went to the library and took out that fibro/mps book today. It looks helpful. What I would like to know is does anyone out there have any suggestions for coping with the emotional aspect of having such long term pain? After 8 years of fighting chronic pain every day, and still going about my regular life (working, meeting the needs of my family, putting on a happy face when I see other people even though I really hurting physically)I'm exhausted! I am so tired of living with pain. The other day, I had really bad pain at work and so I told them I had the flu and went home sick (I don't do this often). I told them I had the flu, because I've hidden the fact that I have chronic pain from so many people for so long. I guess I'm afraid of being stigmatized by having it. I am just so tired of hiding and fighting.... can anyone relate?

I have chronic myofacial pain also, my own little interpretation, just to keep it simple, fibro you can see. CMP is damaged, can't be repaired by exercise, and exercise does make this worse. They are all under the umbrella of Arthritis. Fibro is the muscle, arthritis the bone or joint pain, and cmp is the tissue connecting the two. I have all three, and once you read up on them you can distinguish the difference, some. Hell, it all hurts and they are often confused.