Hi! I'm new to the site. I won't get into all the reasons I was on high dose narcotic meds by Rx 3-4x's a day for over 15 years plus Lyrica for over a decade but as of Aug of last year I wanted off the meds. Since I thought I was haivng no side effects from the Lyrica and didn't want to go into an ortho surgery on narcotics I detoxed (too fast) off my narcotics first. That was a special hell and I will say that after all those years the meds were not changing my pain levels at all. How could they be? Same dose, 15 years.
Once I was off the narcotics and thru the holidays and surgery, I started having a ton of weird symptoms. I looked up Lyrica's 'official' site and saw that my extreme insomnia and restlessness were on their list. Before the wean I was having racing heart rate, blood pressure all over the place, double vision, severe headaches and insomnia. I once again weaned off way too fast. I had to go back on the med and am still weaning down. Someone on a site about getting off the med said their detox was worse than one they had done for narcotics and I couldn't imagine but I must say, this is its own hell. I have been at 25 mg daily now for 8 days. I had to get my Dr to order the low dose pills to be able to continue the slow wean. I am so nauseated, dizzy, stomach cramps, diarrhea, headaches, extremely sensitive burning skin that feels as if needles are sticking me, flashes/noises when I move my eyes... it has been terrible. I had hoped to be off completely by now but even with phenergan, pepto, pepcid, and ambien and imitrex it has been so hard. I wondered if anyone else had had such a hard time with Lyrica in particular and how long before you were off and felt semi-normal again? The thing- I don't think any of my pain was ever nerve pain. I was such a compliant patient, scared to death of losing my "life-line" of Rx's that I swallowed whatever was suggested, thinking that without the meds I would be in an agony I couldn't imagine.
Please know I am not ant-pain clinic or pain meds. When my pain reaches an intolerable level I will still take a narcotic pain pill. But I want to know what my pain is and not build a tolerance that doesn't help in the long run. I think the people at the pain clinic wanted to help. I blame myself for my fear being the dominant factor in my actions. Not study or reason. I have lived with pain for years and have been bed ridden with yet a new pain issue for almost 2 months but I am seeking reasons before returning to a pain clinic. I think my issues are mild compared to some of the notes I've read by some chronic sufferers here. It is great to know we are not alone but wow- so many people suffer so horribly daily!
Same stuff different day. Had some really awful thoughts overnight while I should have been sleeping. Finally got a few hours of sleep and woke up to the sound of my little girl needing me.Her smile.Her laughter.Her cry.The sound of her sweet voice.She makes me happy to have lived through it all. Hopefully she doesn’t turn out anythig like me or her Daddy. I wonder if that’s even remotely...
I’m in way to the hospital some of my conditions have gotten worse, I can’t explain it all now cause I feel a little dizzy. But I feel scared & alone & so so tired of all this so I’m reaching out for support that it goes ok im scared