Hi! I'm new to the site. I won't get into all the reasons I was on high dose narcotic meds by Rx 3-4x's a day for over 15 years plus Lyrica for over a decade but as of Aug of last year I wanted off the meds. Since I thought I was haivng no side effects from the Lyrica and didn't want to go into an ortho surgery on narcotics I detoxed (too fast) off my narcotics first. That was a special hell and I will say that after all those years the meds were not changing my pain levels at all. How could they be? Same dose, 15 years.
Once I was off the narcotics and thru the holidays and surgery, I started having a ton of weird symptoms. I looked up Lyrica's 'official' site and saw that my extreme insomnia and restlessness were on their list. Before the wean I was having racing heart rate, blood pressure all over the place, double vision, severe headaches and insomnia. I once again weaned off way too fast. I had to go back on the med and am still weaning down. Someone on a site about getting off the med said their detox was worse than one they had done for narcotics and I couldn't imagine but I must say, this is its own hell. I have been at 25 mg daily now for 8 days. I had to get my Dr to order the low dose pills to be able to continue the slow wean. I am so nauseated, dizzy, stomach cramps, diarrhea, headaches, extremely sensitive burning skin that feels as if needles are sticking me, flashes/noises when I move my eyes... it has been terrible. I had hoped to be off completely by now but even with phenergan, pepto, pepcid, and ambien and imitrex it has been so hard. I wondered if anyone else had had such a hard time with Lyrica in particular and how long before you were off and felt semi-normal again? The thing- I don't think any of my pain was ever nerve pain. I was such a compliant patient, scared to death of losing my "life-line" of Rx's that I swallowed whatever was suggested, thinking that without the meds I would be in an agony I couldn't imagine.
Please know I am not ant-pain clinic or pain meds. When my pain reaches an intolerable level I will still take a narcotic pain pill. But I want to know what my pain is and not build a tolerance that doesn't help in the long run. I think the people at the pain clinic wanted to help. I blame myself for my fear being the dominant factor in my actions. Not study or reason. I have lived with pain for years and have been bed ridden with yet a new pain issue for almost 2 months but I am seeking reasons before returning to a pain clinic. I think my issues are mild compared to some of the notes I've read by some chronic sufferers here. It is great to know we are not alone but wow- so many people suffer so horribly daily!
Hospice is going to my grandparents home tomorrow for my Nana. Her cancer is spreading and chemo will stop. I don’t know how much longer she will be with us. Mom and I are going over tomorrow. Mom is a nurse aid and she has questions to ask hospice. I am going for moral support and because I want to visit them anyway. It’s getting real
I need my former job to get back to me. I NEED A FUCKING JOB. Why aren't they getting back to me? They said they were looking forward to having me back and asked me how soon I could start. Granted, that's no guarantee of employment, but it was a good omen. I'm unbelievably bored not doing anything all day-- I've been trying to occupy my time with drawing, mask-making, etc., but I can't stand...