Chronic Pain Support Group
Physicians and professionalsdefine pain as chronic if it lasts longer than three to six months and is persistent. It's distinct from acute pain that is a direct result of injury or trauma. This support group is dedicated to those suffering from chronic pain. Discuss treatments that have worked for you, find advice for your specific experience, and find support. You're not...
so when i went in for my MRI my primary told me to get two CD's of my MRI one for rhummy and one for nero and guess what i did...
i came home and popped the CD in my computer and looked at it...bad bad idea..
i'm not a nurologist but this is what i do know they had a sepreate file on the CD of thing the raidiologist thought the nurologist would find interesting. And this is what i found:
swelling in the 3rd and 4th ventricle in brain
brain cell atrophy and death
a hole in in my brain where there shouldn't be one
and liesions in frontal lobe, (normal for migrainers, people with ADD, bi polar ect) cerebreal cortex, base of skull(don't know what its called whatever is adjacent ti spine) and in oceptilal lobe
bad bad rachel! so somethings not right, but i don't know to what degree is normal for lesions and amount and where ect
i shouldn't have looked
i came home and popped the CD in my computer and looked at it...bad bad idea..
i'm not a nurologist but this is what i do know they had a sepreate file on the CD of thing the raidiologist thought the nurologist would find interesting. And this is what i found:
swelling in the 3rd and 4th ventricle in brain
brain cell atrophy and death
a hole in in my brain where there shouldn't be one
and liesions in frontal lobe, (normal for migrainers, people with ADD, bi polar ect) cerebreal cortex, base of skull(don't know what its called whatever is adjacent ti spine) and in oceptilal lobe
bad bad rachel! so somethings not right, but i don't know to what degree is normal for lesions and amount and where ect
i shouldn't have looked
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https://www.romper.com/p/17-earth-day-memes-to-help-you-celebrate-the-environment-9252good morning all,let's thank Mother Earth today!i was so beat yesterday, i read about your days and laid down for a nice nap. the wait was short for the jab, so i had plenty of time before leaving for that appointment. somemhow, the paperwork i'd filled out wasn't there, so repeating that was obnoxious and the...
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good morning everyone,i think we were all ready to celebrate the victory for human rights and against police brutality, esp against citizens of color. every person of color should be able to walk with the abandon of this little girl i saw on the beach at gyanilla in pr. i wanted to be dancing on the streets, but it was quiet here. i'd just come upstairs and i wanted to run back down and announce...
I remember, not too long ago, when they wouldn't give you films at all. I still can't get reports from the diagnostic office..have to get a copy from my doc after I speak to him. I am amazed at how many people get the reports directly. And of course they try to play doctor.
When will you see your doctor? The waiting is the hardest and now that you have all these questions it will be worse. Keep in mind that the body is an awesome thing and often when there is a problem it finds a way to reroute things to make them right.
Try to keep busy. I find that is the best way to forget about the medical stuff for a while.
wait tell you see doctor . try to think of other things.WARMEST HUGS EVER MINNIE .
I ask for reports all the time just in case the doctor missed something.
I have several doctors that will put the disks on there computers and explain what different things are.
It helps to be an informed patient.
Hugs & Prayers,
Mary
Anyhoo sorry for that rant.
The questions i have for nureo is dose my brain look like someone who has Hydrocephalus and a secandary condition to Relapsing Remiting mulitple sclerosis for about 5 years. Thats what it looks like to me on my scan. I'm probably way off tho.
Here's a great big air hug to you!
(P.S. I would have looked at the cd too! )
Your doctor is not following thru.
When I have test like this not only am I schedule for the test but an appointment is already booked one week out to go over them. Two of my doctors will book the test for the morning and an appointment for that afternoon to go over them they're hooked into the hospital's computer system.
No one needs the added stress of having to wait to find out the results of test like these.
Will keep you in my thought and prayers.
Second=Anyone would have looked. I have both my MRI's and all my reports in a book. I know that A: When I go the ER when I am completely unable to walk/move/stand (happens about 3 x / year) I don't want them to think that I am over exagerrating to get meds. I bring my book with me and that way they can read the reports, pop the discs in etc. B: I know that I will be filing for SSD in the not too distant future and I am prepared off the bat with all the information I could get a hold of 20 years worth.
Third=I know this looks terrible, but try NOT to read into it. On one hand, you know it's not normal and you have been desperate for answers for a long time...potential MS diagnosis was well known. On the other hand, you and none of us are trained to read those and in the MD world it could be "moderate, minor or severe"...where in the Non-MD world...we all go "HOLY SH*T"
Whatever happens Rayfoof...we are here to support you and help and offer our friendship. HUGS to you my friend.
I hope you dont worry too much. Sometimes the medical jargon sounds really scary and it sounds bad ... I know as soon as you find out whats happening and know what you are dealing with *exactly* you can get a plan in place and things will be fine.
At a time when you DONT need anymore stress- it would help tons if they would do what they are supposed to do and get things straight! I mean, c'mon... they should realize that you dont need to be worrying about referrals and where to go etc etc...
Im sure you will take care of that though on Mon.
Hugs
LFH
Of course you looked! But like several on here has already said get on the phone to that doc tomorrow.
Do you know how I look at this? I look at it as you finally have some answers and yeah to that.!! The specialists can look them over for you and determine what in the world has been going on with you and finally treat you and hopefully get some of your symptoms calmed down.
Don't look at this as bad news, but as good news. Yes the waiting is tortuous, but you can make the drs get the move on! I'm excited for you that finally you should get some answers.
Big Gentle Hugs, Toni
First of all HUGE hugs for you! Second, I would have done the same thing! I would have done that and then go in the internet and research each and everyone of the points that the Radiologist made and then call my best friend that is an MD, and then call my GF that is an ARNP, see where I am going??? Honey, you did nothing bad, it is human nature, and with ALL that you have been thrugh in the last few years and with ALL of the unanswer questions that you have about your health, you did the normal thing, you looked at the results.
Baby, I just hope that you get to those Doc's soon. If you have to walk the referrals your self to those offices, do it! Do whatever you need to do so that way you can finally get some answers. My thoughts and positive karma are with you. Big Hugs,
Tipper
You have so much going on right now that I first want to give you a BIG gentle hug and say that I am here for you. I think that Superduck and Tipper have both said everything that I was going to say. They do that a lot to me. Lol. I hope that you have started contacting everyone that you need to, and are getting somewhere with those appointments and referrals. Please let us know how you are doing with those, and always know that I am here with hugs, and some laughter, for you.
Much love and Laughter,
Beck