Just joined this group; I've been dealing with mysterious painful and disruptive symptoms affecting my nervous system, vertebrae, and joints for 8 years. I'm 30 years old. I believe my hypermobility has a play in what I experience, which includes shifting of joints, especially my shoulder, vision problems from the neurological effects, nerve pain, joint and muscular pain, tightness like no other (the way my vertebrae and joints pop and crack without end in sight makes others gasp and stare but I can't help it). The most effected area is a linear area on the left side of my spinal cord, affecting my left eye, the nerves in my face, and incredible discomfort and shifting of my left shoulder, neck, back. There is tightness and pain throughout all joints in my body, to the point where my gait is affected and I sometimes have trouble sitting and getting up. I have tried multiple doctors, specialists, treatments, medications, and spent a LOT of money; without relief or answers. I don't know where to go from here but I also can't ignore it because it is a major part of my everyday life. I haven't found anything like my symptoms; and I'm thinking that filming the shifting of my muscular skeletal system is the only way to show the next specialist what is happening with my body everyday. I am ordering a shoulder brace to help with every day life as well as an inversion table for more effective stretching. I have been in intensive chiropractice care for scoliosis/sciatica but honestly my symptoms are still present after almost a year of treatment. I have done physical therapy, OMT...nothing. I'm thinking I could have EDS but my symptoms are not specific to those of EDS, nor fibromyalgia which a specialist diagnosed me with at one point. I work on my anxiety to try to bring my body peace..but it's more than that. Does anyone know of anything like this or have any advice on next steps? Thank you, Andrea
Today i Day 17 and I want a glass of red wine like crazy. I would love just one, but I'm not stupid I know that it would end up being 5 or 6 and I think my feelings right now are frustration, exhaustion and feeling I deserve a glass of wine after shampooing rugs and cleaning house. I have lost 5 pounds and am sleeping real sleep now and do not want to start all over again. I have no wine or...
Grass growing, flowers blooming, birds chirping, open windows,I want to fill my mind with visions of Spring. Sick of winter.