Chronic Pain Support Group

Physicians and professionalsdefine pain as chronic if it lasts longer than three to six months and is persistent. It's distinct from acute pain that is a direct result of injury or trauma. This support group is dedicated to those suffering from chronic pain. Discuss treatments that have worked for you, find advice for your specific experience, and find support. You're not...

2,110 Members
21,673 Posts
2 Online
Brain & Nervous System
/ Chronic Pain Support Group

Chronic Lyme Disease

Lymy
Lymy

anyone out there suffer w/ chronic Lyme disease. Constant pain, fatigue, debilitating and invisable. I need people to talk to that understand my life, from the inside out. Not talking about a tick bite and 3 weeks of doxycycline. Referring to 2 percent of the spectrum that end up with chronic, degenerative pain and all that encompasses, physical and cognative

Jonsparky
Jonsparky
Sorry to hear that you have this! My brother just found out he has chronic Lyme's disease, I haven't talked to him about it yet. With Fibromyalgia and psoriatic arthritis, I can relate, invisible diseases are difficult for yourself and others to understand what is going on.
Hope you get some help with treating it!
Lymy
Lymy
How do you get friends to understand. It's always I hope you feel better- I never feel good - only bad and worse
Jonsparky
Jonsparky
I know what you are saying, the concept of chronic pain is so foreign, unless you have had it in your own life. Friends and family tend to get tired of listening to us, so then we stop mentioning it, and just say we are surviving.
drangonflylady
drangonflylady
I have chronic Lyme's. It is very hard. I spent 2 and a half months in the hospital when I first got it.
One thing that has helped me explain my many medical illnesses is "The Spoon Theory" check it out on Google. It has helped me to explain things to people.
Posts You May Be Interested In
  • Jonsparky

    Massage therapy triggering FMS

    Posted by: Jonsparky
    Last Reply: Jonsparky
    15
    I had a one hour accupuncture session, the Doctor put in about 60 needles from head to toe, then I had a one hour massage. It triggered a flare, when I got home I collapsed for about 4 hours, it usually starts by triggering my neuropathy with my feet going up to my knees. I felt like I was comotose, it is a horrible experence. I love the after effects of accupuncture and massage, but I don't know...
  • Leo

    Monday Meowning Check-in

    Posted by: Leo
    Last Reply: Jonsparky
    17
    Good morning! Hope everyone had as good a weekend as possible:-)Well, another day at the zoo. Feeling quite cranky and out of sorts. Monday. Cats underfoot. Pollen all over like grease in a fryer. Just one of *those* days, y'know?***I am reading "Code Girls" by Liza Mundy. It's informative and easy to read. About women code-breakerrs in WW2. ONe reason they got the job? The generals didn't think...