Finally, an optimistic update! Got lucky and was put in touch with a patient advocate, after weeks of having my calls redirected back to my PCPs nurse. She validated my frustration with my doc’s redundant tests/treatments and lack of solid treatment plan, as well as the lack of communication between my providers. She offered to help with paperwork for a referral to a bigger hospital system for ortho & pain management. It’s out-of-network, but pending approval, I’m scheduled to see an ortho who specializes in treating younger people with hip arthritis on 1/26. Luck was on my side again and I got in for a same-day appointment with my PCP afterward. My mom came in to the office with me for the first time; usually I go alone, but I was so out-of-it from pain and lack of sleep that she insisted. She can be... terse... and it makes me uncomfortable, but yesterday it was a boon. She said I/we were ready to do whatever was necessary so I can sleep and take care of myself and told the doctor off about the ridiculous wait times I was facing. For the first time, he seemed to realize it was unacceptable. He prescribed stronger meds and did his part for the insurance authorization paperwork for the specialist.
Pain is managed around a “7” right now with meds. Slept nearly 2 hours in a row last night. Still really dazed, but finally feeling human again, able to think straighter. Had lost the capacity to think about the future for a while. Still so many logistical nightmares to work out, but at least there’s wind in my sails. Big thanks to the people who have been here for support and advice, it’s gotten me through the bleakness.
So that’s my check-in/update. I’d love to hear how everyone else is doing. What’s going on in your world? How’s your week been?
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